Eye sight post meningioma removal - Meningioma Support

Meningioma Support

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Eye sight post meningioma removal

Skygirl19 profile image
5 Replies

Hello,

4 weeks ago, my Mum had a meningioma removed that was close to the optic nerve. The surgery took 8 hours & they got all of it our apart from a small part that is close to the optic nerve. However, the surgeon hopes that this bit will just shrivel & die off, now that the blood supply is gone.

Four weeks later and my Mum is in a specialist neuro rehab place & is making progress with her mobility. However, she has been left with eyesight that is worse that it was pre-surgery. She says that everything is darker & she can't see faces, the tv etc, etc.

She has been given steroid, as they think it may be inflammation from the surgery. However, I am really worried that this is going to be permanent & perhaps some damage was done during surgery.

Does anybody have any knowledge or experience of this?.

Any comments are gratefully welcome!!!

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Skygirl19
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5 Replies
BrainBrain profile image
BrainBrain

I am 5 weeks post op and my eyesight in the affected eye is not as good as it was (it was already slightly impaired by the M). When I've asked people about it before on the Facebook support group it seems like recovery is slow in this situation though. For example one woman told me hers got better 8 months after surgery. I will ask my NS about it - I'm seeing him in a couple of weeks, but I'm not worrying about it at this stage as it's such early days in the recovery of a nerve.

When my other half had a herniated disc operated on it took over a year for the sciatic nerve to get better, and he was in his 20s then, so I really do think you're looking at a long term thing, but not necessarily permanent, and it's far too early to worry. My NS said the risk of temporary damage to the optic nerve was about 10% and the risk of permanent damage was also about 10% in my particular case.

Best of luck to your mum, and to you xxx

Skygirl19 profile image
Skygirl19 in reply to BrainBrain

Thankyou. You have helped me feel better.

All the very best for your recovery.

Lytham profile image
Lytham

My vision in the eye the Meningioma was behind is worse post surgery but it's a small price to pay, wishing your Mum a speedy recovery :-) x

Skygirl19 profile image
Skygirl19 in reply to Lytham

Thank you so much for replying. Mum seems to have it in both eyes :-(. Just want her to be able to live an independent life. I wish you the very best for your ongoing recovery and please let me know if your eye sight improves!

Lytham profile image
Lytham in reply to Skygirl19

Oh dear, the numbness in my face from nerve damage took months to go, hopefully she'll get some normality back eventually x

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