Update: Today is a full body Pet scan again for my husband who has Stage 4a metastatic melanoma. This is to rule out any surprises as he moves into a hybrid approach for the 4 locations of current small tumors located on the shoulder, clavicle, abdomen and side.
The image attached is from his shoulder where the melanoma has continued to grow and is a dark blue/ black. It is actually about double this size from when I took this photo 11/2/18. You can also see where it is red from previous surgical excision from the same area a year ago. The radiation planned will be for 6 rounds, every other day in delivery. He will get 6 Gy for a total delivery of 36 GY using a protocol out of MD Anderson in Texas of higher intensity radiation over a shorter duration. Efficacy is the same as the lower dose/ longer duration of treatment. They will expand the radiation target field about 2 cm from where all visible melanoma is.
For the other 3 locations he will have surgical excision in the oncology surgeon's office. Waiting for dates for these.
In other news, the side effects from the discontinuation of prednisone seem to continue to lessen: less queasiness, less shaky hands.
We are feeling grateful to have plans in place to move forward since more immunotherapy is not available (He's had 42 treatments of Keytruda and 3 of Yervoy). Since he is Wild type the BRAF specialist in Columbia recommended none of those meds for my husband. That's our update as we keep moving forward into 2019.