Club Bed

[PaigeyPaigeForLife]

Happy New Year Beautiful People!

I have been living wirh chronic fatigue since 2013 and still struggling

I have been in bed on and off since last year October, more in bed than off. This is terrible, i struggle to make my bed, clean myself, prepare and cook meals, i have an active 15 year old and most times I'm unable to take her to her activities. Her friends mom help with transport when needed.

I don't have much joint pain but sometimes I have pain in both my hands and my right knee has started to really pain since last December. My head feels funny, I feel nauseated, very weak and I slow down a lot! Staying in bed is best for me.

I try to get up and do things but I have to rest a lot even driving is a struggle. This year will be nine years with this.

I have named my bed, Club Bed with Dj Pillow & Blanket. My faith keeps me from getting depressed and keeping my anxiety at bay.

My name is Paige

[ALKT]

i have noticed for some years now that this forum is very quiet regarding members with m e . perhaps you would have far more interaction on a site like science for m e . they have more than just science discussions and are a very active and welcoming bunch of people .

[PaigeyPaigeForLife in reply to ALKT]

Thank you

[klr31]

Have you had tests to rule out other causes of fatigue i.e thyroid, iron, B12, D, ferritin and folate?

Karen

[PaigeyPaigeForLife in reply to klr31]

I have been tested for everything under the sun 😏 this is very annoying and it seems to be getting worse for me more days in bed and less days taking part in my life

[klr31 in reply to PaigeyPaigeForLife]

Best to get your results and check yourself. You are entitled to them.

[PaigeyPaigeForLife in reply to klr31]

I have been tested and I am also tired of all the testing. Last year was a very trying year for me, breast cancer diagnosis, surgery then radiation and also navigating the pandemic and my Polycystic kidney disease.