Hello there. I'm new to this forum. I've had ME for 22 years and I lead a very quiet life. Last July my previously mild tinnitus got very loud - and it still is . I've had a tough time coping with ME & tinnitus together. I need silence for ME and sound for tinnitus. Does anyone else have both? How do you cope? Thank you.
Cfs / ME & tinnitus : Hello there. I'm... - Myalgic Encephalo...
Myalgic Encephalomyelitis Community
Hi! I have both and find it infuriating, no real advice to offer but just moral support.
Hi I have both. I think my brain blanks out a lot of the tinnitus. It’s very loud if I take notice of it. I have lost the hearing in that ear.
Hi Pat. That's encouraging. I'm hoping to get to the stage where my brain blanks it out. I've lost my hearing in one ear too. I don't know if it's due to the ME or something else.
Yes I’m never quite sure but diagnosed with menieres but don’t have faith in the medics so I just take their views and deal with the symptoms myself
Yes, me too, I use background noise ; music, tv etc to distract me, sometime silence is the worst 🙋
Hello JKW1. I'm not resting in silence anymore - unless I'm really tired. The T seems so loud in comparison. I'm experimenting with different sounds. Mostly radio or CD's. Very soft music seems to be a good option .
Relaxation recordings can be good. I have a few, my favourites at the moment are waves on the shore (pebble, gravel and sand), sounds of the sea, (which includes boat sounds and animals) and falling rain (in different settings and onto different surfaces)I hope you find sounds that Sooth you, Good luck 🙋
Thank you! Where can I find recordings of natural sounds like these? Are there CD's out there? I don't have a smart phone or a tablet.
Solitudes is the name on my CDs which in the past I have bought them from Garden centres where they have a machine playing different types of um “gentle nature” type of music. Can’t think of the usual term/ name. Anyway, one presses a button on the type of sounds /music you want to hear ( birds, stream, nature, waves etc ) up to about 30 to choose from on the machine. And it will play for about a minute or two. Press another button to listen to another sound. But if no garden centres near you have these machines. They are available pre owned or new on an online auction site as I’ve just checked now for you.
I also have CFS/ME & Tinnitus also. With me, It gets noisier from later afternoon onwards.
I have fibromyalgia, ME, and tinnitus too. I’m having a hearing test on the 13. My doctor thinks my vertigo is linked to it all.
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