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Anyone paid private for a tilt test for pots syndrome?

Charts profile image
6 Replies

Just wondering if anyone paid privately for a tilt table test for pots syndrome and how much was it? My doctor thinks I may have pots syndrome but I know it will take time to diagnose and my symptoms are quite severe so I need a answer.

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Charts profile image
Charts
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6 Replies
Osteomyelio profile image
Osteomyelio

Have they already checked your viral titers for CMV and EpsteinBarr?

(many people will test positive for these viruses but unless they get the titers of viruses they may not have all relevant data that may play a role in a person’s Tilt Table test) My Insurance covered my Tilt Table

Charts profile image
Charts in reply to Osteomyelio

No haven't had any of that checked. Would a neurologist do that? I'm seeing one in a couple of wks

Osteomyelio profile image
Osteomyelio in reply to Charts

My neurologist ordered the tilt table because I had orthostatic hypotension and he was checking for neurologically mediated hypotension issues or if issues were related to viruses.

roselavenders profile image
roselavenders

Yes, here is a list of doctors who diagnose and treat PoTS - also privately

potsuk.org/doctors

I saw a doctor privately for PoTS and get meds for it

Charts profile image
Charts in reply to roselavenders

What meds did they give you? I know they usually give beta blockers but my Resting heart rate is low around 60, would I be able to have beta blockers as I would be worried it would drop my heart rate lower when at it lowest when Resting?

roselavenders profile image
roselavenders in reply to Charts

I’m taking Ivabradine. My resting heart rate is very high though. I saw Dr Nicholas Gall in London who is really good and treats patients with different types of PoTS. I think they have a range of medicines, I do know some people with lower resting heart rates who get other medicine for pots, depending on what happens to their blood pressure (ie does it go up or down with standing)- medications include midodrine, Ivabradine, beta blockers.

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