I was diagnosed with CFS in 2015 - and still have it. I remember maintaining at the time of diagnosis that my health issues stemmed from a physical cause (in my case I suspect the CFS was triggered by having Coeliac Disease), yet all the doctors at my local practice could offer me was a mental health referral for GET and CBT. Has anyone else experienced this? Or anything similar?
I ask because I have been given the opportunity to write a layperson report (sadly no pay is involved 🙁) to try to get my local NHS CCG to do a review of ME/CFS.
Is anyone else also finding that they are having to educate their doctor on their condition?
I would very much like to see the treatments and knowledge improve in my area of the UK ie. the Midlands (and I’m guilty of self interest here...!), so anything you could contribute would be very helpful/useful.
Thanks in advance 🙂