Well! Emotions ran high both in the chamber and amongst the viewers. We were heard with issues raised. Whether the minister actually acts is another matter.
Main issues:
We are invisible with poor health care, social care, education, benefits and support.
NICE must consider CBT and GET as whilst the harm they are reported as causing is known the minister for health will not intervene.
We can refuse treatment that we consider harmful
Legal challenges will occur to all that continue with harmful and/or absent services
It is for health care professionals to keep up to date so ignorance of ME and current literature is no defence
There is a training program for doctors, not sure what this is or the content
The MPs that spoke on our behalf stand with us and insist that our voices are heard
ME is a research priority although it was made clear that all non-psychological research is funded by patients
No increased or ring fenced research funding was offered although argued for
CCGs are to be asked what provision they make for ME services.
A long debate but a good one. If you look at Parliament TV you will find the whole of it. Appearing on You Tube too.
Interesting article on ME/CFS
Did your journey into ill-health begin with digestive problems?
Norwegian Directorate of Health - Apology
Living with ME/CFS - as a partner. 