Hi, I'm 19, and I've been ill since 8. When I was 14 I became severe, and since then the way my body seems to tell me that it's had enough and that I've reached my limit by giving me a really uncomfortable hot flash. I also find that the hot weather seems to speed up that process, so I then reach the overheating stage faster than I do in the colder months.
I just really want to know if any one else gets the hot flashes, for the same reason?
I get sweats and chills when I over exert or sometimes they just seem to occur. The worse my ME is the less ability I seem to have to maintain a comfortable temp feeling - I'm either too hot or too cold 
That sounds like it :/ Good to know that I'm not the only one. Thanks for the comment Raffs x
Yes as Raffs says, inability to control your body temperature is just one of the many symptoms of ME.xx
I get shaky, cold and shivery and must lie down. I also can't tolerate heat. I don't know if it's ME or not as I don't have a formal diagnosis, it's just assumed I probably have ME.
Problems with temperature can also be a symptom of thyroid issues.
Yes, 100%. I'm 21 and my mum is 55 and going through the menopause - she has so much sympathy for me now she understands just a tiny part of CFS/ME from a personal perspective.
Waking up, the bed and my body drenched in sweat, being so hot you can't sleep even with no duvet or heating on. It's a nightmare. We got digital thermometer thingy to check room temperatures and it's 15C or below - the average in the UK is 18-24 degrees.
And the spring weather is making it worse. I can't sit in the sunlight for more than 10 minutes before feeling like I'm in the middle of the Sahara Desert and about to pass-out!
I'm dreading the summer sunshine - it always makes life difficult.
I have to say, going to Vienna, Austria in February was amazing - it's so cold. I actually slept - like a log!
Yes, I know this problem well and the more fatigued I am the worse the sweats are. I have a tower fan facing my bed so when I feel like I'm about to spontaneously combust (!) I can switch it on and get some quick relief. The fan has a remote control which is blutacced to the headboard.
All the best x
Yes I know all too well and I had a fan too but we got two baby chihuahua puppies so I just have to sweat it out. Sadly hubby has come down with something dreadful and has been in hospital for the last 10 days, I suffer from agrophobia and anxiety but had to go to see him yesterday, he is waiting for a bed in Preston neurological unit... not doing very well, despite my step daughter helping me, the extra stress and work load with the puppies is wearing me down... I just want him home 😢
Had you suffered from the agoraphobia and anxiety before the ME?
I have had awful anxiety since getting ill and have to really push myself to be around people.
I am sure you are counting the hours til he's back. I'd be lost without my Mrs.
Had them but not to this extreme, since my son died suddenly six years ago it's got dreadful, the lead up to anything, seeing gp or hospital appointments get me in such a state, once I am there I feel calm, unless I have to wait, but that night and the day after is awful I feel like I have been hit by a truck and couldn't get ant sleep last night because I must be so pumped up with adrenaline. I have seen him once in 10 days and he has to get a bed in Preston and then they have to find out what the problem is. I am exhausted and don't know how much longer I can carry on managing. I am lost without him....
I am very sorry for your loss, I can't imagine how difficult that must be.
Regarding the Drs appointments I have a similar reaction - I go to bits on the run up and am exhausted after, think its a negative association! I avoid the Drs at all costs at the moment.
No Raffs, for me it's not a negative association as my doctors are lovely, I think it's a real phobia of people and places, not sure which as you have to go to places to see people, either way the anxiety is huge....
Sorry Iresee I was referring to my own issue with Drs. The anxiety I developed with ME hits me at any time and if I didn't force myself would prevent me leaving the house at times. I was warned that ME could cause anxiety but didn't think it would happen - man was I wrong!
Hey, i'm 21 and get the same thing. feels like my body can't control it's own thermostat and like I have the symptoms of a fever, I get really hot but start to feel shaky and have goose bumps, my body will feel boiling to touch and I will start to feel unwell!
x
Who diagnoses ME/CFS?
My boss thinks I am lazy!
Underactive thyroid and ME.