Lucentis for Central Serous Retinopathy

[Jogie]

I have had bilateral CSR for over four years and the hospital did not offer treatment for the first three years. Last year, I moved house and so moved hospital too. My new opthamologist is much more proactive. Earlier this year I tried Epleronone but it did not work. My consultant has successfully applied for funding for PDT but has decided to try a Lucentis injection first as I do have some blood vessel growth visible on my recent scans.

I didn't think blood vessel growth was typical of CSR but have subsequently learned that it can be a complication of it. I had my first Lucentis injection last week.

I know that Lucentis is usually used to treat Wet AMD and Diabetic Retinopathy so I am a bit confused. My consultant says I don't have either of these.

Has anyone else had a similar situation? Have you successfully treated CSR with injections?

[Bigtish]

Hi Jogie, I have had a similar experience. 2 years with seeing same doctors. No treatment. In fact one said my eyes were not bad enough to treat with20/20 in left eye and 80/20 in the other. 2 weeks ago I saw a new ophthalmologist I had seen 5 years ago for floaters. He has suggested a fluorescent dye angiogram to see where the leak is with a view to using laser to treat the leak. Waiting for the results. He didn’t offer anything else as he said Epleronone was not usually successful and had side effects. I can ask him next time about the Lucentis injection.

[ironbrain]

Neovascularization can occur with CSR, I've read and had confirmed by a doctor at MREH (not that I have CSR).

[Hidden]

Hi, I don't have csr but had lucentis and eyelea inj for brvo with Mac oedema - they are used for more than wetmd or diabetic retinopathy so doesn't sound unusual they've given it to you esp given the blood vessel growth. Good luck going forwards

[180164]

Hi I've had chronic csr for 11 years and I have had numerous pdt treatments. I'm also registered as partially sighted good luck with the lucentis

[alalex101]

I have chronic CSR in one eye for many years. Tried Lucentis injections x3 without improvement.

[Maryvic]

I have CRVO, central retinol vein occlusion, have been having Lucentis injections for several years. My vision has been stable. Started with injections every 6 weeks, now up to eight weeks and to nine soon.

Hope this helps you. SO many kinks to be worked out with eye treatments. Would really help if there was a better focus on patient education and support.

I am in US. 🥴

[Jogie]

Just an update, the Lucentis didn't work so I am having PD T tomorrow

[Hidden in reply to Jogie]

Good luck x

[Torontoresident]

Hi Jogie, did the PDT work for you?

Thank you

[Jogie in reply to Torontoresident]

Hi, it worked in a way. It reduced the fluid but it didn't improve my vision. This might have been because the fluid had been there for over four years already so there was too much scarring. But, yes, in terms of fluid reduction it worked.

[Torontoresident]

Thanks for letting me know, it's much appreciated. I might have to have laser done as well as my condition might be chronic. My current vision in that eye is still decent (20/30) but have a bit of distortion.

Did you have any distortion and has it helped with that?

[Jogie in reply to Torontoresident]

I have distortion when the amount of fluid is in a period of change. When the fluid is stable (even if there's a lot) the distortion stabilises. I haven't had distortion in my lasered eye since the laser. I am reluctant to have my other eye lasered though as I don't know whether the reduction in vision in my lasered eye is because of the length of time the fluid was there or the last itself.

[Torontoresident in reply to Jogie]

Thanks for sharing your experience.