Hi all, I am new here and seeking some support & inspiration. I am a high myope (-10 &-12) and nearly 3 years ago, aged 41, was diagnosed with cnv in the left eye. This was treated with 2 injections of Lucentis, resolved well and remains stable. Now, aged 44, I have developed cnv in the right eye, which is currently being treated with Lucentis. The consultant tells me that the rest of the retina looks relatively OK for a high myope, with the RPE having healed well in the left eye. Although he has tried to be encouraging about my prognosis, I have read the scientific literature and am all too aware that having myopic cnv in both eyes at my age is not great... I am also concerned about macular atrophy, not least as I have lacquer cracks in both eyes.
Being online has proved largely very depressing and although I am trying to stay positive and be grateful to have access to anti-VEGF injections, I cannot help but worry and feel depressed about the future. My job relies heavily on being able to use my eyes, and I have young children. Does anyone have any success stories, their own or other people's (e.g. long-term stability, retinas that stay healthy even after cnv etc.)? I have never met anyone with myopic macular degeneration and feel very very isolated. In particular I would love to be able to talk about things with someone in a similar age bracket or someone who is working and bringing up kids. I asked my consultant if any other patients might be happy to talk to me and got short shrift! The Macular Society, while excellent, seems preoccupied with AMD and the person I spoke to on the helpline was well-meaning but not very helpful.