Hi, I’m 38 and whe I was 35 I started to see curved lines with my right eye.
I always was astigmatic in that eye
I ve underrated this fact until this October. When I started to notice the same defect in my left eye and I noticed that it was getting worse in the right.
I went to my oftalmologist that make me do a angiographic exam and an Oct.
tha diagnosys is pseudovitelliform macular dystrophy.
He say that is so slow and so mild that I will notice a real change in my eyesight when I will turn 70 or so.
I even fo7nd that my father got this disease and he passed away at 74 and he was still able to drive (but I have to admit that I don’t know how was measured his sight)
Nowadays with no glasses I can see almost 20/25 in my left eye (where the lesion is smaller) and 20/40 in my right eye.
On the web I found a lot of scinetifical studies but nobody that can witnesses me how really is the follow up of this Disease.
My doc tried to make me feel better and calm but I m still very worried.
Somebody can help me ?
Written by
Antonio79
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I have to say that I have never come across Pseudovitelliform Macular Dystrophy before, but it may be similar to Adult Vitelliform Macular Dystrophy.
The condition however usually manifests itself later in life than age 38. I have found the following from the internet;
'Adult-onset vitelliform macular dystrophy (AVMD) is an eye disorder that can cause progressive vision loss. AVMD affects an area of the retina called the macula, which is responsible for sharp central vision. The condition causes a fatty yellow pigment to accumulate in cells underlying the macula, eventually damaging the cells.[1] AVMD usually begins after age 40. Some people remain without symptoms throughout their life. Other people with AVMD may slowly develop blurred and/or distorted vision, that can progress to central vision loss over time. In the past, AVMD was believed to be mainly a genetic disorder caused by mutations in the PRPH2, BEST1, IMPG1, and IMPG2 genes; however, recent studies focused on genetic testing suggest that the genetic cause for most cases of AVMD has not been found. Sometimes AVMD clearly runs in families in an autosomal dominant manner, but the inheritance is suspected to be more complicated in the majority of cases.'
I am afraid that we cannot be more specific, but there may be other forum users who have more information on the condition.
Understandably you will be concerned what the future will hold for you.
The Macular Society are a UK based Charity and if you live in the UK, please call our helpline for a chat on 0300 30 30 111 (9.00am to 5.00pm Monday to Friday).
Best wishes
Macular Society
Hi Antonio79 sorry I can't offer information on your condition but just wanted to send a hug x
Diagnosis of any eye condition is scary and should be thought of like a bereavement so be kind to yourself and seek counselling if you struggle with worry for the future.
Having said that, worrying won't help and will only spoil the good days you have now so try to focus on the positives in your life as much as you can.
It is natural to want to know what will happen but the fact is none of us know the future, whether we have a medical condition or not.
It is good your father could still drive at 74 so take heart from that. Make sure you monitor any changes and have reviews with your Dr. Wishing you well going forward x
Sorry to hear this- the adult form of this is often genetic- and usually progresses slowly - as Eyesright has said, the fact that your father was still driving at 74 is a good sign for you. Take care of yourself and take heart. One site suggests that it is just like dry AMD which again is a slow moving problem
Just to make you aware, the impact of the diagnosis of any eye condition and indeed any stage in the process is generally compared to experiencing bereavement. Individuals frequently go through very similar feelings and responses and in no set order. We do have a free telephone counselling service. Please contact us for further details if this is of interest. We need the individual’s verbal consent in order to be able to refer them. It takes a counsellor a maximum of a week to make the initial call. Our counsellors are fully trained and the majority have sight loss themselves. Sessions consist of approximately 6 of around 45-50 minutes each. I am copying a link to our booklet on Emotional impact:
Hi Antonio. My name is Michael. I'm 43 years old and I was diagnosed with macular dystrophy a few years ago although I am unsure whether or not mine would be considered best or adult onset. I had no idea about this condition previously to having been diagnosed. I had had symptoms for years like flashing lights and distorted vision in and around my central vision. I have tried to explain to people what I see, but I think only someone with this condition could understand. Would you be interested in discussing it with me?
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