Drusen? Any ideas when found in younger pe... - Macular Society

Macular Society

5,108 members2,530 posts

Drusen? Any ideas when found in younger person

Fizzywhizz profile image
19 Replies

Hello

I am 39 years old and have just been told by the optician at spec savers that I have slight wear and tear of my right eye. She wanted to be cautious and has referred me to an eye specialist. I have absolutely no symptoms and in fact my right eye is my better seeing eye. She pointed out a couple of faded white circles on the photo and explained that you shouldn't normally see this in a person of my age. She was very reassuring that was routine. On receiving a copy of the letter she has stated that she notes '3 or 4' so scattered drusen. Of course the first thing I do is Google...great I now predict I'm probably going to end up losing my central vision due to macula degeneration, although the term was not mentioned to me. I am just wondering if anyone had been in a similar situation or that by having these drusen meant that I would definitely progress onto the disease? There is no hereditary macular degenegation in my family. I'm also pregant and could do without the worry 😐 any tips / ideas / findings great fully received! I already follow a good diet. Thanks- Kate

Written by
Fizzywhizz profile image
Fizzywhizz
To view profiles and participate in discussions please or .
19 Replies
Macular_1 profile image
Macular_1

Hello Kate,

I am sorry to hear about your drusen.

You are as your optician says, very young at age 39.

It is good that you are being referred to see a hospital ophthalmologist. However, at your young age you may need to see a specialist who is experienced in diagnosing a specific condition.

Whilst we on the Macular Society helpline are not medically trained, we do know that there are 2 types of drusen.; hard and soft.

The hard drusen is not too much of a concern, but the soft can be a sign of a macular condition.

Try not to get too worried at this stage; wait until you have seen an expert for a firm diagnosis.

If the news isn't good, please call our helpline 0300 30 30 111 and we can have a chat with you.

Best wishes

Helpline

Macular Society

Fizzywhizz profile image
Fizzywhizz in reply to Macular_1

Thank you for your reply, I'm fairly certain they are the hard ones as she said I could wait a year and go back to them for observation if I preferred. Can you recommend any specialists in the Dorset area? I have private health care. Keen to stop overthinking asap. Best - Kate

Macular_1 profile image
Macular_1 in reply to Fizzywhizz

Hi again Kate,

In Dorset you are limited to either Bournemouth or Dorchester. Whilst there are some competent ophthalmologists there, according to our database, none of them specialise in conditions in younger people.

If you wanted to see a good specialist who could give you an accurate diagnose, I would suggest Professor Andrew Lotery at Southampton.

He has a private clinic next to Southampton General Hospital. His private secretary's telephone number is 0845 652 2515.

Please call our helpline 0300 30 30 111 (9.00am to 5.00pm Monday to Friday).

Best wishes

Helpline Macular Society

Fizzywhizz profile image
Fizzywhizz in reply to Macular_1

Thank you very much, I will look him up.

Best regards

Kate

tallyho profile image
tallyho in reply to Fizzywhizz

I myself saw Prof Lotery privately he was very good. I had to pay though myself as I did not have private health care. It cost me Just under £1,000. He is world renowned one of the best and well respected there is.

Fizzywhizz profile image
Fizzywhizz in reply to tallyho

That's good to know thank you. I have spoken to his secretary and the diagnostics are being arranged. I spoke to my gp about it and she thinks I'm overly worrying....is referring people of all different ages to the eye hospitalfor bits and bobs found in the retina on fundoscopy pictures, advised me to stay off Dr Google, prob good advice, hope she's right!

Vegano23 profile image
Vegano23 in reply to tallyho

Hi,

Can you please let me know what advice he gave you..

My son has been diagnosed with Druisen at just 18 and I'm beyond worried about him, if this guy is worth seeing I'd pay to see him..

Please can you reply

Thanks..

tallyho profile image
tallyho in reply to Vegano23

Professor lottery is based in Southampton ( as far as I know) he is amazing and very well renowned so if you can see him I would def get an appointment with him.

Fizzywhizz profile image
Fizzywhizz in reply to Vegano23

Hello

I can completely understand your worry but I'm led to believe that drusen aren't always something to worry about.

I didn't get any other advice from Prof Lottery other than to eat a diet rich in leafy greens. He didn't perceive the drusen in my eye to be unusual. I haven't had any changes either in normal sight examinations or any more drusen appearing so I have basically put it to the back of my mind.

I do take a supplement called 'eyewise' though made by Natures Best.

As far as I'm concerned I may also have had them since my teens.

Hope that helps and that you can take some reassurance.

Best wishes

Kate

Vegano23 profile image
Vegano23 in reply to Fizzywhizz

Thanks for the reassurance, I feel a little better..

I'll look into those vitamins too

Regards

Angela

AleksM profile image
AleksM in reply to Fizzywhizz

Im 30 years old,2 years ago while I was on eyes exam was told that I have drusen in both eyes. Still I didn’t go to check if there’s some changes but worried that this drusen can be sign for macular degeneration. Im so worried about the drusen :( I read your comments that this is not always sign of degeneration but still scared. Sorry for my english if its bad. Looking foe peace of mind

Lynae profile image
Lynae in reply to Macular_1

That phone number doesn't work, help

Fizzywhizz profile image
Fizzywhizz in reply to Macular_1

I have just spoken to lead opthamolagist at my opticians, he compared my pictures from 2014 and they are exactly the same. No one bothered to even mention it back then. This is quite settling as that was my first ever eye test so they could have been there years. He stated I have little reason to be concerned. Apparently the change is very subtle. I'm seeing professor lotery on Monday, hoping to be able to put it to the back of my mind. Fingers crossed! I spoke to someone on your helpline...very helpful.

Fizzywhizz profile image
Fizzywhizz in reply to Macular_1

Hello

Just thought I would post an update. I saw professor Lotery who literally just did a visual eye test and shone the bright lights into my eyes no other diagnostics deemed necessary. Explained yes a couple of tiny drusen looked like dry and to basically forget about them, eye sight excellent no sign of degeneration. Didn't think they would ever cause me any probs especially as I'd had them for at least 4 years with no change. Could have had them years prior as it was my first ever eye test 4 years ago but they didn't even bother to tell me then.

He was very reassuring and just said that if I wanted to have yearly eye examinations I could just to monitor them. Explained that normal to see a few in age over 50 so a couple at 39 was acceptable.

I am naturally relieved - on the plus side it has spurred me into eating a very healthy diet also.

May provide some reassurance to people who find themselves in a similar position.

Thanks for previous advice

Kate

sindia3b profile image
sindia3b in reply to Fizzywhizz

glad you are a lotbetter x

kevinaki profile image
kevinaki

Knowing what I know now, I should not have ignored an opthamologist's advice to take vitamins for the eyes years ago. Now I have dry AMD in one eye (asymtomatic) and wet AMD in the other. Who knows if it would have helped to prevent my present problems? On them now, also with a daily kale/blueberry/broccoli etc. smoothie and hoping for the best....

Ayayay80 profile image
Ayayay80 in reply to kevinaki

That is the problem. There is no proof either way whether or not you could have averted AMD. When my consultant questioned my life style at my very first visit I replied: "If that was the case then why do some people start with this disease in their 40's and 50's, yet I started it at the age of 79." (Now 80 and still walk about 20 miles a week across rough countryside, sometimes alone and sometimes with our club). He had no answer to that. All he could say was: "Well, we are all different." I agree though, there is never any harm in living a healthy life style. I just object to people saying you got this or that because....

in reply to Ayayay80

I totally agree with you, as if taking all of the vitamins under the sun could prevent, or delay, the onset of this insidious disease. What we all need, are doctors who would like to show some interest in AMD, and then perhaps we could be facing a cure!

Vegano23 profile image
Vegano23

My son was diagnosed with Druisen he has only just turned 18, I am so worried, the hospital said he has swelling behind both hi eyes...

He was discharged last year before this covet 19 and they have not sent for him to have any more check ups..

I am so worried, please what can I do to help him?

He has been through a terrible time also due to myself and his dad separating and has been very depressed, I feel so scared for him..

Any advice please??

You may also like...

Any ideas please?

sight problems. Especially for those of us with macular & retinal problems. I really want the pain...

Drusen, dry AMD and AREDS2

Moorfields by my optician who was worried about 'hard drusen' in both eyes and double vision in...

Can somebody tell me about drusen?

some sort of debris. What causes them? Where in the eye are they located? Do they accumulate in...

Black 'blobs' in my eyesight!

administering the injection. She was being trained at my last appointment and this time she was on...

Newly diagnosed & terrified😨

left eye, plus there's one starting on my right eye. Then he said but you appear to have macular...