I want to help by sharing info... - Macular Society

Macular Society

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I want to help by sharing info...

light2sight5153 profile image
13 Replies

My friend of 40 years recently lost a lot of her vision to AMD. She had to stop driving and working. She'll never drive again but she is getting back to work after help from several rehab folks and new assistive devices. 

When she had to quit work, it was devastating. She wanted to keep a journal to make her feel productive and also she thought she could help people going through something similar. She asked me if I could do a blog for her. I did more than that, we have a website. Half of it is dedicted to her journal pages where she writes about what is happening to her both good and bad. She's a pyshcologist & she writes about using a cognitive therapy on herself. It's not psychological advice just suggestions about what works or doesn't work for her.

I have been doing research on all kinds of topics about AMD & i've written blog posts with that info.

We don't get any money from this. We just want to help others. She continue to write & I continue to do research so if you like what you see, please sign up as a follower (your email address will not be shared with anyone).

mymacularjournal.com

If you have any questions or suggestions, please let me know.

Hang in, things can get better, Linda...

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light2sight5153
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13 Replies
David_Wales profile image
David_Wales

Very comprehensive blog/website, there must be something for everyone here, thanks for the link

light2sight5153 profile image
light2sight5153 in reply to David_Wales

We'd like to think we've covered most of what is important to those with AMD.  There is so much out there but we found it hard to navigate it all.  That's why we've taken the time to organize what we've found to be helpful.

light2sight5153 profile image
light2sight5153 in reply to David_Wales

Come join us on our Facebook group (info above) where we can share with each other!

Sima1952 profile image
Sima1952

I don't have AMD, thankfully, but l lost sight in both of my eyes over a period of 2 days, 11 mths. apart and can no longer drive etc. Can l sign up to your blog please?

light2sight5153 profile image
light2sight5153 in reply to Sima1952

I am so sorry about your loss.  Of course you can sign up!!  Do you understand how to do that? If not, I can add you from my end.

light2sight5153 profile image
light2sight5153 in reply to Sima1952

Sima1952, did you find our website? If you need help, please email me directly at light2sight5153@gmail.com. And see my reply above, we now have a Facebook group...we'd LOVE to have you with us!

Sima1952 profile image
Sima1952 in reply to light2sight5153

I'm just about to send you an e-mail.

light2sight5153 profile image
light2sight5153 in reply to Sima1952

I got your email, did you get my reply? Let me know if you're having problems.

Sima1952 profile image
Sima1952 in reply to light2sight5153

No l didn't get your reply, could you send it again please.

karenchia profile image
karenchia

I like that

karenchia profile image
karenchia

I suffer amd on right eye. How to prevent the left one?

in reply to karenchia

Hi Karenchia,

I believe there is something called areds2 you can take which has nutrients good for eyes . The Macular Society has info, look at their website. Green leafy veg also good for eyes (has lutein), kale and spinach the best to eat I think, you can make soup, smoothies etc.

Good luck.

light2sight5153 profile image
light2sight5153

I just want to update this. We now have a Facebook group to go with our website. The advantage is that with the group, we can share information and our concerns with others who are going through similar things. Plus, it is easier for me to share posts from 50 other Facebook groups that have pages/groups on Facebook.

You can find us at

facebook.com/groups/mymacul...

or search for us at

My Macular Degeneration Journey/al

If you have any problems, email me directly at light2sight5153@gmail.com

Come join us, I think you will find it to be very helpful, Linda...

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