Advice on maintaining remission for Large ... - Lymphoma Canada

Lymphoma Canada

655 members118 posts

Advice on maintaining remission for Large B-Cell NHL

MateoBeach
MateoBeach

My best friend from Toronto area is spending some weeks with me in Los Cabo Baja (Mexico). A year ago he presented with severe hypercalcemia, nearly fatal. Discovered to have extensive skeletal lesions from "Large Cell, B-Cell non-hodgkin's lymphoma". He spent most of the time since on 7 rounds of a chemo 4+ drug cocktail including high dose prednisone. He is now in remission from that and is slowly recovering from it all. He has many skeletal lesions that cause substantial pain and will need surgery to attempt to stabilize. He is not on any medications for cancer now.

My question, that he has not discussed with his MO is this: Are there any medications that have been shown to be useful to help maintain the longevity and stability of his remission from this form of NHL?

5 Replies
oldestnewest

Hello, I hope that your friend is feeling better. He definitively should inquire about CAR-T treatment.

Thank you for replying with this suggestion Doremefasol. I will certainly pass it on to him. He now has som worrisome nodes appearing on his scans. Yours is the first answer to my post so I appreciate it. I am on tha Advanced Prostate Cancer forum where it is a very active resource for the latest in treatment options as well as a supportive community. Happy Memorial Day to you.

Please go to CLL forum for your friend. I am not sure if there is a Prostate Cancer Forum here .Have you tried to look for it?Are you located in Canada or the USA?

No I have been on the terrific Advanced Prostate Cancer forum on Health Unlocked for years. I am in the USA but my friend is Canadian. I am looking for ideas and support for him because he won’t do it himself. Thanks for your tip on CAR-T.

I don’t know where he is located ,but Montreal and Toronto have this treatment

You may also like...