CLL Patient Survey

[LCAdmin]

If you have CLL and have been treated with either ibrutinib (Imbruvica) or venetoclax (ABT-199) we need your help.

Lymphoma Canada is preparing submissions for the pan­Canadian Oncology Drug Review (pCODR) for:

1.Ibrutinib (Imbruvica) for patients with previously untreated CLL for whom fludarabine-based treatment is considered inappropriate

2.Venetoclax (ABT-199) for patients with relapsed/refractory CLL.

You can help by completing our survey, which will provide us with the patient input required for the submissions. pCODR uses this information to help them make recommendations to the provinces and territories regarding funding for new cancer drugs.

BY COMPLETING THIS SURVEY, YOU ARE PART OF THE PROCESS THAT MAY HELP PATIENTS GAIN ACCESS TO THESE TREATMENTS IN CANADA.

You do not need to live in Canada to complete this survey.

The survey will be open until midnight Pacific Time on Wednesday, April 20th and should only take 10 minutes of your time.

Please share this link ( surveymonkey.com/r/SRWKYMX) and help us spread the word.

Thank you for your support.

[JodiQ]

My husband was diagnosis three years ago, we traveled to Houston Texas where that same week imbruvica was approved, at Anderson MD hospital they did all the necessary blood work up, his cll was aggressive due to his markers. My husband was non symptomatic, so we were quite surprised. He started on caps 140 mg three times a day, One Physician said the first few months, he might be quite sick, another Dr said here in Virginia he would feel fantastic, he stayed the same, and so far he is doing great, no issues at all, he does take a shingle preventive medicine with this, and a thyroid med because six years ago he was diagnosis with thyroid cancer, the mildest form, but they removed the whole thyroid, he is active, works full time at a shipyard, and has a positive attitude, grocery shopping right now after a good game of golf today!

[LCAdmin Administrator Lymphoma Canada in reply to JodiQ]

Thank you for sharing JodiQ . We're happy to hear that your husband is doing well.