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LUPUS UK

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Hoorah

Hi lovely Lupies, an update on my post despairing of getting any support. Today...

Tooting Lupus Group - First official face-to-face meeting - Saturday 6th April - Wimbledon Library from 12pm

Come and join the Tooting Lupus Group, for our first official face-to-face meeti...
michaellasmith profile image
Administrator

Extremely worried about contrast CT scan

Hi all, I had to go to the rapid access chest clinic and they want to do a co...
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Malar rash caused by heat?

Hello, just wondering if this looks like a malar rash, and if so, can be trigger...
Nome11 profile image

Hydroxychloroquine toxic retinopathy

Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily sin...
Juniperm profile image

eye problems?

Have just had a Hydroxy eye check referral to my local hospital where I was told...

Paul's last day today

Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Pleas...
Debbie_kinsey profile image
Administrator

hair loss, flares & iron deficiency - will it ever stop?

Hi I’ve had lupus for 15 yrs and diagnosed for 8. I’ve had flares lasting mont...
Beau2016 profile image

Blue badge

Does anyone have any advice on completing the application for a blue badge? I’m...
marypw profile image

Contacting

HelloWhen you have your first appointment (I was GP referred) your Rheumatologis...
CaviarRed profile image

Examining the evidence for whether a neuropsychiatric symptom is directly caused by lupus - latest paper from the INSPIRE study

The latest paper from the INSPIRE study suggests that some neuropsychiatric (NP)...
Debbie_kinsey profile image
Administrator

How do you contact your Rheumatologist?

Hi lovely Lupies. Just a quick question to people in the UK regarding how you ma...

Coming to terms with avoiding the sun

I practically lived outside, swimming, walking, gardening, reading etc. Now I'm...
AnonLupi profile image

Cutie Woolly Jumpers

Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much ...
misty14 profile image

Most days, I can handle work…

I work in a hospital in the ER and OR department. I am having trouble with brain...

Give your feedback to help us update our "Lupus: A Guide to Pregnancy" booklet

We're updating our "Guide to Pregnancy" booklet with the new medication guidelin...
Debbie_kinsey profile image
Administrator

Sinus and cough

Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started t...
Mctd profile image

Raynaud's in nipples?

does anyone else get this?
Brychni profile image

hydroxychloroquine/ Methatrexate

Hi looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sj...
Den73 profile image

Tooting Coffee and Chat - including a workshop with Nick Wright from CAB - 27th March 6.30pm!

Come and Join the Tooting Lupus Group for our next virtual Coffee and Chat sessi...
michaellasmith profile image
Administrator

Haplotype testing

Evening :) wanted to ask if anybody did haplotype testing in UK for HLA genes? S...

Missed MTX dose..

hi this is my first time missing a dose as I’m on antibiotics for an infection...
Tonkie profile image

Pacing and stress concern

Hi all! I recently signed onto the Visible app and wearable, which allows you...
Treetop33 profile image

Advice: temperature

Hi everyone Haven't posted for a while due to my health status. Seeking advice...
Amakura profile image

Views on study design for lupus nephritis research

A research team are planning a study and want to get the views of people with lu...
Debbie_kinsey profile image
Administrator

Low RBC

Anybody had problems with red blood count? Is it because of the methotrexate? Th...
Deiniol profile image

Figuring things out - first year since diagnosis

Hi, I'm posting here as I don't know anyone in real life with lupus and have bee...
CGSLE profile image

Malar Rash?

hey I dont mean to intrude on a space made for people actually suffering with Lu...

Lupus or another Autoimmune Disease?

I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic G...
Milescircus profile image

SLE flare up

Hello everyone I’m after some advice please. At the moment I’m having an SLE f...
COCO66lola profile image
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