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LUPUS UK

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Diet & Lifestyle posts

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Coming to terms with avoiding the sun

I practically lived outside, swimming, walking, gardening, reading etc. Now I'm trying to come to terms with avoiding the sun. I'm wearing high spf...

I practically lived outside, swimming, walking, gardening, reading etc. Now I'm...

AnonLupi

•1 month ago

8 Replies

Practical Weight loss advice whilst on steroids and MMF

Ugggghhh. Steroid weight gain has been a real thing and I was already “fluffy” before I started high dose steroids back in November. I’d lost 18 pounds when I...

Ugggghhh. Steroid weight gain has been a real thing and I was already “fluffy” b...

LalaH52

•3 months ago

9 Replies

Tiredness and feeling weak, any tips?

These last few days I've felt tired and weak, even after just waking up. Walking up the stairs is tiring, I took a short walk on Friday, and on the way back I...

These last few days I've felt tired and weak, even after just waking up. Walking...

poppies_are_red

•8 months ago

9 Replies

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Running with autoimmune disease

Hi, sorry I have looked but can't find a page about autoimmune diseases/connective tissue diseases so I hope it's OK to post here? I joined when I suspected I...

Hi, sorry I have looked but can't find a page about autoimmune diseases/connecti...

AcheyAnnie

•10 months ago

18 Replies

Lupus flare-ups strongly linked to specific bacterial growth in gut

Hi lupies, More research linking the gut and lupus. Recurrent bouts of systemic lupus erythematosus, marked by the body's immune system attack of its own...

Hi lupies, More research linking the gut and lupus. Recurrent bouts of system...

Naladog

•10 months ago

7 Replies

LUPUS, activity and exercise

Hi everyone, I am 31 and was diagnosed with Lupus in September 2022 and started treatment which I've responded well and am currently feeling much better. Up...

Hi everyone, I am 31 and was diagnosed with Lupus in September 2022 and started ...

Blossom751

•1 year ago

14 Replies

Bit of a vain question about fake nails

I can't seem to keep either fake acrylic nails or Gel nails on for more than a day or two. I've tried lots of different gel brands and been to different nail...

I can't seem to keep either fake acrylic nails or Gel nails on for more than a d...

Lulamay7

•1 year ago

7 Replies

Advice about getting a cat

Hello all, I'm looking for advice/reassurance from fellow lupies about getting a kitten or two. I've always been a cat person but never owned one. I'm moving...

Hello all, I'm looking for advice/reassurance from fellow lupies about getting ...

lingdings

•1 year ago

12 Replies

Any side effect from beetroot juice?

Hello, I have been trying to drink a glass of beetroot juice daily and I get unwell soon after I drink and stay that way all day long. This is very puzzling as...

Hello, I have been trying to drink a glass of beetroot juice daily and I get unw...

Paprika60

•2 years ago

11 Replies

Exercise and weight gain

I'd be grateful for advice. I've recently been diagnosed with lupus, but have had the symptoms and indeed many of the signs for at least 5 years. I've now got...

I'd be grateful for advice. I've recently been diagnosed with lupus, but have h...

Ophelia1

•3 years ago

9 Replies

Electric bike -lupus friendly exercise

4 months ago my husband purchased an electric bike through the Govt Cycle To Work scheme, which I have been using for my own exercise and it has been just...

4 months ago my husband purchased an electric bike through the Govt Cycle To Wor...

PrincessPearl

•3 years ago

8 Replies

Wrist pain

I’m an avid reader but can’t hold hold a book or kindle for more than 20 minutes due to RA pain and stiffness but I’ve found this which is great ! If just...

I’m an avid reader but can’t hold hold a book or kindle for more than 20 minutes...

Hidden

•3 years ago

23 Replies

Exercise and Lupus?

Hi everyone, I’m 21 years old and i’ve been diagnosed with lupus and APS for two years now, it’s been a really rough journey and this past year i’ve been...

Hi everyone, I’m 21 years old and i’ve been diagnosed with lupus and APS for two...

lupeylady

•3 years ago

30 Replies

If you have some time to spare, I need your help!:)

Hi Everyone, This is my first time posting on here and strangely it has nothing to do with lupus itself. Yes I do have lupus, I was diagnosed with lupus...

Hi Everyone, This is my first time posting on here and strangely it has nothing ...

vasiliki_v

•3 years ago

13 Replies

How to loose weight

I have been gaining a lot of weight even before my Lupus diagnosis and it's getting worst. I went from a size 34 to a size 40 in under two years. My question...

I have been gaining a lot of weight even before my Lupus diagnosis and it's gett...

Rene1980

•3 years ago

1 Reply

Vaccine

I’m a discord lupus sufferer and I’m just enquiring does the vaccine have any effect if I get it done I’m actually quite frightened to get it done as I feel...

I’m a discord lupus sufferer and I’m just enquiring does the vaccine have any ef...

Beaufort10

•3 years ago

5 Replies

A warning about SAMe supplement

Hi, hope everyone is having a good day. I'm just posting this as a cautionary tale for anyone thinking of trying SAMe as a supplement. It's sometimes...

Hi, hope everyone is having a good day. I'm just posting this as a cautionary ta...

Choccy8

•3 years ago

4 Replies

Looking down over Bassenthwaite lake

And another one x

Maddymay65

•3 years ago

3 Replies

Getting some fresh air... Ling Fell

Took a slow walk up Ling Fell before lockdown, to get some fresh air, such stunning views, but very cold and icy. thought I would share a photo, Happy New year...

Took a slow walk up Ling Fell before lockdown, to get some fresh air, such stunn...

Maddymay65

•3 years ago

5 Replies

Return of Red 😊

Having an off day but fair cheered up by the return of our larger Red squirrel who has visited a lot recentlg but been udive to the camera, Visited today all...

Having an off day but fair cheered up by the return of our larger Red squirrel ...

Maddymay65

•4 years ago

1 Reply

Too much candy

Has anyone ever hurt real bad and they're right side and kidney area after eating huge amounts of candy chocolate peanut butter M&M's to be exact LOL ! I ate...

Has anyone ever hurt real bad and they're right side and kidney area after eatin...

rockinr_56

•4 years ago

13 Replies

Financial cost of Lupus

When I read posts from newly diagnosed lupus warriors on here I think about the things I wish I had known early on. One thing in particular is how much it...

When I read posts from newly diagnosed lupus warriors on here I think about the ...

Cathyan

•4 years ago

9 Replies

Finally we can go outside

It sounds like it’s still going to be awhile at home, especially for us that are extremely clinically vulnerable. However, I’m excited to go for my first walk...

It sounds like it’s still going to be awhile at home, especially for us that are...

Nerdvana

•4 years ago

25 Replies

Plant based diet recipes/sites for new Vegan?

I have noticed since being on MTX that I always feel best when I avoid meats, breads and eat light, so I am looking at plant-based cooking, the thing is I have...

I have noticed since being on MTX that I always feel best when I avoid meats, br...

OneLove2019

•5 years ago

19 Replies

Food

My family keep asking what I have eaten today. The contast nagging in regards to what foods I have eaten is getting me down. The judgement is contast and I am...

My family keep asking what I have eaten today. The contast nagging in regards to...

SLE-Warrior

•5 years ago

3 Replies

AIP Diet (Autoimmune Protocol)

I have been reading about the above diet and I have decided to give it a try. For those who haven't heard of it, as the name suggests it is a diet for anyone...

I have been reading about the above diet and I have decided to give it a try. Fo...

junemc

•5 years ago

10 Replies

TRY THIS IF YOU HAVE LUPUS PLEASE

In a previous post titled HINTS I suggested a few things that really helped me. At my worst I could barely walk 10 metres before I had to rest for a few...

In a previous post titled HINTS I suggested a few things that really helped me. ...

JOWE

•5 years ago

2 Replies

And relax....

Hi everyone, As part of managing my condition I have taken up meditation or mindfulness. I have been trying out smartphone apps. My top 3 at the moment (free...

Hi everyone, As part of managing my condition I have taken up meditation or mind...

MarkJT

•5 years ago

6 Replies

Gut bacteria in lupus

Folks, did anyone do any gut bacteria tests? There is so much talk about gut microbiome influencing lupus...I did some tests and found out that I have gut...

Folks, did anyone do any gut bacteria tests? There is so much talk about gut mic...

miccika1

•5 years ago

43 Replies

Some things that have helped relieve my symptoms

Hello all, I wanted to post and let you know about some things which have really helped relieve my Lupus symptoms over the past few months. For years, I was...

Hello all, I wanted to post and let you know about some things which have really...

MaCoBu

•6 years ago

19 Replies

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Diet & Lifestyle posts

Coming to terms with avoiding the sun

Practical Weight loss advice whilst on steroids and MMF

Tiredness and feeling weak, any tips?

Running with autoimmune disease

Lupus flare-ups strongly linked to specific bacterial growth in gut

LUPUS, activity and exercise

Bit of a vain question about fake nails

Advice about getting a cat

Any side effect from beetroot juice?

Exercise and weight gain

Electric bike -lupus friendly exercise

Wrist pain

Exercise and Lupus?

If you have some time to spare, I need your help!:)

How to loose weight

Vaccine

A warning about SAMe supplement

Looking down over Bassenthwaite lake

Getting some fresh air... Ling Fell

Return of Red 😊

Too much candy

Financial cost of Lupus

Finally we can go outside

Plant based diet recipes/sites for new Vegan?

Food

AIP Diet (Autoimmune Protocol)

TRY THIS IF YOU HAVE LUPUS PLEASE

And relax....

Gut bacteria in lupus

Some things that have helped relieve my symptoms

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