Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,676 members • 28,062 posts

Sort posts by:

Sunhats

Hello,Please can I have some advice re sunhats. I am going to Crete in July. I have hats I wear, but I was wondering if anyone knows of a factor 50 hat, that...

Hello,Please can I have some advice re sunhats. I am going to Crete in July. I h...

heatherose

•14 hours ago

4 Replies

ANA ratio 8.3 . What does it mean?

I’ve googled this but just can’t figure it out. Can anyone help to explain?

IsleofWight1

•22 hours ago

2 Replies

Malar and/or rosacea?

Hi everyone I wondered whether any members here have both rosacea and a malar flush on their faces? I have a constant red flush across my cheeks but when I'm...

Hi everyone I wondered whether any members here have both rosacea and a malar fl...

Wispymisty

•2 days ago

10 Replies

Want to take advantage of all our features? Just log in!

World lupus day

Hello, On looking online in 2023 there was a 10 day challenge I really want to do this and set up a go fund me page, I've ordered a tshirt I just need to...

Hello, On looking online in 2023 there was a 10 day challenge I really want to ...

Sunshine634

•2 days ago

2 Replies

Four legged Cutie

Hello everyoneJust thought I'd pop in to show you this special cutie foal born at Whipsnade Zoo. He's a breed that is classed as extinct in the wild and...

Hello everyoneJust thought I'd pop in to show you this special cutie foal born a...

misty14

•2 days ago

15 Replies

Do you have lupus and live in Wales? We would like to hear about your experiences of care in NHS Wales.

A national survey is being carried out in Wales to hear from people with lupus about their experiences of care in NHS Wales. Your feedback will help us...

A national survey is being carried out in Wales to hear from people with lupus a...

nakita_cambow

Moderator•4 days ago

Be the first to reply

Stomach issues

Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and...

Morning all, So I am just about at my wits end with chronic gastric reflux and ...

M0wnt

•4 days ago

14 Replies

Feet and legs …..Ever changing symptoms.

Good morning im asking if these symptoms are familiar with anyone or if it’s nothing to do with UCTD/Lupus. I’ve been getting them on and off for a while...

Good morning im asking if these symptoms are familiar with anyone or if it’s not...

IsleofWight1

•4 days ago

19 Replies

Supplements Again..

Hi Everyone. It's taken me a long time to write this post, but is there any one particular site/publication etc where I can find out about contra indications...

Hi Everyone. It's taken me a long time to write this post, but is there any one...

CavendishCool

•5 days ago

12 Replies

Need Help With Results From Blood Test

Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in...

Hello everyone, I recently started having burning sensations, tingling and pain...

Jadaboo4

•5 days ago

13 Replies

Can anyone help please?

Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015....

Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possi...

Jodelights

•5 days ago

3 Replies

Pneumonia and collapsed lung after catching the ‘100 day cough’

For all you folks who have Lupus, please be careful of this ‘100’ day cough that is going around at the moment, as this is what caused me to end up in...

For all you folks who have Lupus, please be careful of this ‘100’ day cough that...

Loopy1971

•5 days ago

3 Replies

Just Chillin.......

This is Hugo chillin out while he waits to go out in the wind and rain this morning. Pulling on waterproofs and wellies and playing ball is last thing I feel...

This is Hugo chillin out while he waits to go out in the wind and rain this morn...

Spanielmadlady

•6 days ago

40 Replies

Covid

hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have...

hi all forum people hope your all as well as you can be. I have lupus and got c...

Geeforce99

•7 days ago

1 Reply

spleen

Hi has everyone had problems with their spleen i had an ultrasound yesterday to look at my liver but they said my spleen was extremely enlarged Ive had lupus...

Hi has everyone had problems with their spleen i had an ultrasound yesterday to ...

diane46

•7 days ago

7 Replies

Lupus centre of excellence

Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks

Morning all, can anyone advise if they have been referred to a Lupus centre of e...

Jenfy34

•7 days ago

7 Replies

Negative blood tests

Hi I had an appointment with my rheumatologist last month. She had a quick look at my hands and then pressed on my shoulders and asked if it hurt, it did ever...

Hi I had an appointment with my rheumatologist last month. She had a quick look ...

Evie26

•7 days ago

4 Replies

belimumab Infusions

Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on...

Hi all, I’m suppose to be starting belimumab infusions next week, however there ...

MaryannM

•8 days ago

1 Reply

New study on the day-to-day experiences and challenges of living with SLE – recruiting now

A study by researchers at the University of the West of England (UWE) is investigating the support needs of people with SLE. The researchers hope to use this...

A study by researchers at the University of the West of England (UWE) is investi...

Debbie_kinsey

Administrator•8 days ago

Be the first to reply

Looking for a diagnosis.

Hello, I’m a 60 year old man. I’ve been diagnosed with triple positive Antiphospholipid Syndrome for over 10 years. Increasingly I am having spells of fatigue...

Hello, I’m a 60 year old man. I’ve been diagnosed with triple positive Antiphosp...

BTR1963

•8 days ago

8 Replies

It’s Mira Monday 🐶❤️

Hi folks , it’s Mira,s 4th Birthday tomorrow, for anyone who is not familiar with Mira, she was born right at the beginning of Covid and certainly kept us...

Hi folks , it’s Mira,s 4th Birthday tomorrow, for anyone who is not familiar wit...

svfarmer

•8 days ago

46 Replies

Mapecrine

Hi again all. So ive started mapecrine 100mg . I dont know if its in my head but i have gained weight since taking it and also feel like im holding on to water...

Hi again all. So ive started mapecrine 100mg . I dont know if its in my head but...

Flows

•8 days ago

12 Replies

lupus rash?

does this look like a lupus rash? I have a lot of symptoms of lupus

Ell4132

•8 days ago

5 Replies

Adilumabab

Hello I have just started Adilumabab injections - 1 every 2 weeks How long did it take to see any positive effects? I know we are all different and for some...

Hello I have just started Adilumabab injections - 1 every 2 weeks How long did...

bathouse

•9 days ago

4 Replies

Post massage pain

Hi all, I had a full body massage yesterday for the first time in months... last night about 1045pm I got the most severe costochondritis from under my boobies...

Hi all, I had a full body massage yesterday for the first time in months... last...

Gingernat20

•10 days ago

11 Replies

No meds no symptoms

I was told a week ago to stop all my medication due to a chest infection and WBC being too low. I've been off my hydroxychloroquine and methotrexate for over a...

I was told a week ago to stop all my medication due to a chest infection and WBC...

Sunshine634

•10 days ago

7 Replies

Wild and Windy Cornwall

A very windy weekend in spectacular Cornwall with my friend . Our hotel is in Newquay where we had a challenging but successful and exhilarating 8 mile...

A very windy weekend in spectacular Cornwall with my friend . Our hotel is in ...

IsleofWight1

•10 days ago

5 Replies

Struggling after surgery

Hi guys, hope you are all managing as well as you can be. I had surgery last week, and man, it is kicking my butt. The surgeon repaired a massive hernia (12cm...

Hi guys, hope you are all managing as well as you can be. I had surgery last wee...

MusicalFurbaby

•10 days ago

10 Replies

pigment dispersion syndrome

Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an...

Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar ...

MEGS53

•11 days ago

Be the first to reply

Tips for dealing with GP

Morning everyone. I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I...

Morning everyone. I have discussed my journey with you before and issues I have ...

Mctd

•11 days ago

13 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Sunhats

ANA ratio 8.3 . What does it mean?

Malar and/or rosacea?

World lupus day

Four legged Cutie

Do you have lupus and live in Wales? We would like to hear about your experiences of care in NHS Wales.

Stomach issues

Feet and legs …..Ever changing symptoms.

Supplements Again..

Need Help With Results From Blood Test

Can anyone help please?

Pneumonia and collapsed lung after catching the ‘100 day cough’

Just Chillin.......

Covid

spleen

Lupus centre of excellence

Negative blood tests

belimumab Infusions

New study on the day-to-day experiences and challenges of living with SLE – recruiting now

Looking for a diagnosis.

It’s Mira Monday 🐶❤️

Mapecrine

lupus rash?

Adilumabab

Post massage pain

No meds no symptoms

Wild and Windy Cornwall

Struggling after surgery

pigment dispersion syndrome

Tips for dealing with GP

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive