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LUPUS UK

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Help I don’t understand

So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my...

So for the last 4 months I’ve been having pain in my muscles and head as well as...

Jadaboo4

•2 hours ago

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Help us develop a new information resource on lupus and the menopause

We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to...

We're developing new information resources about lupus and the menopause. We wan...

Debbie_kinsey

Administrator•1 day ago

6 Replies

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experience with you all. Despite years of discussing my menstrual difficulties,...

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experie...

Naladog

•1 day ago

7 Replies

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fatigue after steroid injection?

Hi everyone, I haven’t been on here in a long long time but I need some advice! My UCTD has been pretty well controlled for a few years on...

Hi everyone, I haven’t been on here in a long long time but I need some advice...

SRiley

•2 days ago

1 Reply

Eyes affected by sunlight

Does anyone know about this.? Another surprise for me. I’ve been feeling well, getting out and about, decided to have a rest day today. This afternoon I...

Does anyone know about this.? Another surprise for me. I’ve been feeling w...

IsleofWight1

•2 days ago

15 Replies

Lupus?

Does this look like a Lupus rash?

Dontknowwhattodo

•3 days ago

5 Replies

Lupus rash?

I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems...

I have suffered many different symptoms for a period approaching 15 years. Abo...

Dontknowwhattodo

•3 days ago

16 Replies

infection in ear

Hi! I have a question. I keep getting a recurring Staphylococcus aureus infection in my middle ear. I was wondering, since it is recurring often, if it has...

Hi! I have a question. I keep getting a recurring Staphylococcus aureus infectio...

Willow7733

•4 days ago

3 Replies

Blood test positive lupus

Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to...

Recently had bloods done due to a few skin rashes and I looked at the results an...

Debz1974

•5 days ago

4 Replies

Cool crutches -Bea & Mira

hi folks just wanted to post a pic of my first ever walking stick - who would have thought at the age of 56 I would be needing one. Im so pleased with the...

hi folks just wanted to post a pic of my first ever walking stick - who would ha...

svfarmer

•5 days ago

14 Replies

Good morning.

I took this from the webcam on a local beach. What a lovely start to the day. I can’t get there this morning but now the weather is improving I will be there...

I took this from the webcam on a local beach. What a lovely start to the day. I ...

IsleofWight1

•6 days ago

3 Replies

Lupus re-diagnosis UCTD

Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition...

Hello All, so when I last posted I had been to the rheumatologist Prof X and tol...

KeepingUpBeat

•6 days ago

6 Replies

SPF Article

Hello everyoneFollowing on from Weathervane's interesting post, i saw this article about different SPF creams. Thought it might be helpful as we should all be...

Hello everyoneFollowing on from Weathervane's interesting post, i saw this artic...

misty14

•6 days ago

5 Replies

Thoughts on blood results and next steps please

Blood test resultsI have had most of my results in today and would appreciate some thoughts on the following results please Serum CRP - 6.5 mg/L (<5.0) marked...

Blood test resultsI have had most of my results in today and would appreciate so...

Wispymisty

•7 days ago

5 Replies

prednisolone interacting with contraceptives..? Is this a thing?

hello everyone. It’s been a long time since I posted on here but was just wondering if this is something that anyone anywhere has heard of or experienced?...

hello everyone. It’s been a long time since I posted on here but was just wonder...

SarahLuna

•7 days ago

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Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?

So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body....

So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I hav...

Severancered9

•7 days ago

3 Replies

private MRI

so just found out from having a private lower back mri that I have several degenerative discs, bulging discs and a tear and compression of 2 nerves that I was...

so just found out from having a private lower back mri that I have several degen...

Gizmok9

•7 days ago

10 Replies

Sunhats

Hello,Please can I have some advice re sunhats. I am going to Crete in July. I have hats I wear, but I was wondering if anyone knows of a factor 50 hat, that...

Hello,Please can I have some advice re sunhats. I am going to Crete in July. I h...

heatherose

•8 days ago

11 Replies

ANA ratio 8.3 . What does it mean?

I’ve googled this but just can’t figure it out. Can anyone help to explain?

IsleofWight1

•8 days ago

6 Replies

Malar and/or rosacea?

Hi everyone I wondered whether any members here have both rosacea and a malar flush on their faces? I have a constant red flush across my cheeks but when I'm...

Hi everyone I wondered whether any members here have both rosacea and a malar fl...

Wispymisty

•9 days ago

16 Replies

World lupus day

Hello, On looking online in 2023 there was a 10 day challenge I really want to do this and set up a go fund me page, I've ordered a tshirt I just need to...

Hello, On looking online in 2023 there was a 10 day challenge I really want to ...

Sunshine634

•10 days ago

2 Replies

Four legged Cutie

Hello everyoneJust thought I'd pop in to show you this special cutie foal born at Whipsnade Zoo. He's a breed that is classed as extinct in the wild and...

Hello everyoneJust thought I'd pop in to show you this special cutie foal born a...

misty14

•10 days ago

19 Replies

Do you have lupus and live in Wales? We would like to hear about your experiences of care in NHS Wales.

A national survey is being carried out in Wales to hear from people with lupus about their experiences of care in NHS Wales. Your feedback will help us...

A national survey is being carried out in Wales to hear from people with lupus a...

nakita_cambow

Moderator•11 days ago

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Stomach issues

Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and...

Morning all, So I am just about at my wits end with chronic gastric reflux and ...

M0wnt

•11 days ago

14 Replies

Feet and legs …..Ever changing symptoms.

Good morning im asking if these symptoms are familiar with anyone or if it’s nothing to do with UCTD/Lupus. I’ve been getting them on and off for a while...

Good morning im asking if these symptoms are familiar with anyone or if it’s not...

IsleofWight1

•12 days ago

21 Replies

Supplements Again..

Hi Everyone. It's taken me a long time to write this post, but is there any one particular site/publication etc where I can find out about contra indications...

Hi Everyone. It's taken me a long time to write this post, but is there any one...

CavendishCool

•12 days ago

13 Replies

Need Help With Results From Blood Test

Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in...

Hello everyone, I recently started having burning sensations, tingling and pain...

Jadaboo4

•12 days ago

14 Replies

Can anyone help please?

Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015....

Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possi...

Jodelights

•12 days ago

4 Replies

Pneumonia and collapsed lung after catching the ‘100 day cough’

For all you folks who have Lupus, please be careful of this ‘100’ day cough that is going around at the moment, as this is what caused me to end up in...

For all you folks who have Lupus, please be careful of this ‘100’ day cough that...

Loopy1971

•12 days ago

3 Replies

Just Chillin.......

This is Hugo chillin out while he waits to go out in the wind and rain this morning. Pulling on waterproofs and wellies and playing ball is last thing I feel...

This is Hugo chillin out while he waits to go out in the wind and rain this morn...

Spanielmadlady

•13 days ago

43 Replies

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Help I don’t understand

Help us develop a new information resource on lupus and the menopause

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

fatigue after steroid injection?

Eyes affected by sunlight

Lupus?

Lupus rash?

infection in ear

Blood test positive lupus

Cool crutches -Bea & Mira

Good morning.

Lupus re-diagnosis UCTD

SPF Article

Thoughts on blood results and next steps please

prednisolone interacting with contraceptives..? Is this a thing?

Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?

private MRI

Sunhats

ANA ratio 8.3 . What does it mean?

Malar and/or rosacea?

World lupus day

Four legged Cutie

Do you have lupus and live in Wales? We would like to hear about your experiences of care in NHS Wales.

Stomach issues

Feet and legs …..Ever changing symptoms.

Supplements Again..

Need Help With Results From Blood Test

Can anyone help please?

Pneumonia and collapsed lung after catching the ‘100 day cough’

Just Chillin.......

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