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LUPUS UK

32,131 members • 28,467 posts

All posts for May 2012

Peripheral Neuropathy

I have Lupus SLE , hyper mobility syndrome,and Peripheral Neuropathy does anyone else suffer from feelings of pressure and burning in feet & hands, apparently...

I have Lupus SLE , hyper mobility syndrome,and Peripheral Neuropathy does anyone...

cockneyrebel

•12 years ago

7 Replies

Anyone know of any child friendly Lupus information out there?

Does anyone know where I can find some child friendly info on Lupus? My 11 yr old has been really sensative and tearful recently and told me tonight that 'Its...

Does anyone know where I can find some child friendly info on Lupus? My 11 yr ol...

tidmusshaz

•12 years ago

4 Replies

I have Lupus, Discord Lupus and Lichen Planus it's good to see I'm not alone but I need help??

I don't know what to do? I like a lot of suffers my hair is getting thinner So I'm wondering if having a soft perm is a silly thing to?? Plus does anyone...

I don't know what to do? I like a lot of suffers my hair is getting thinner So I...

Minimum

•12 years ago

9 Replies

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Eye problems

I feel that my eyes are deteriorating. Some days my vision is a bit weird and things seem a bit fuzzy and have to wear glasses all the time other times my eyes...

I feel that my eyes are deteriorating. Some days my vision is a bit weird and th...

witch2

•12 years ago

11 Replies

Helping to bring about change

The difficulties of having autoimmune disease either one or several I have had some truly great care over my life time, but some that has been equally...

The difficulties of having autoimmune disease either one or several I have ...

MaryF

•12 years ago

2 Replies

Has anyone gone vegan or eliminated sugar or gone chemical free to try to treat lupus? How did it work for you?

I have been considering going chemical free since I read there was a link between very long term hair dying and lupus (I've been dying my hair very regularly...

I have been considering going chemical free since I read there was a link betwee...

TeganSara

•12 years ago

13 Replies

Brand new LUPUS UK Awareness Video

Today (for World Lupus Day) we launched our brand new video to help spread awareness of what it is like to live with lupus....

Today (for World Lupus Day) we launched our brand new video to help spread aware...

Paul_Howard

Partner•12 years ago

7 Replies

Has anyone experienced ulcerated ankles, very dry skin and very painful?

dzagotskillz

•12 years ago

7 Replies

World Lupus Day

Tomorrow (May 10th) is World Lupus Day. Lupus groups and organisations from around the world will be working together to help spread awareness and...

Tomorrow (May 10th) is World Lupus Day. Lupus groups and organisations from arou...

Paul_Howard

Partner•12 years ago

2 Replies

One can only dream...

It's too bad doctors are so busy and don't have much time on their hands to join a lupus support group for the purpose of learning what their patients are...

It's too bad doctors are so busy and don't have much time on their hands to join...

Hidden

•12 years ago

15 Replies

pain

yet another day in pain its travelin down my into bottom, it really hurts more when i sit for long periods, 3 months now it has been on

yet another day in pain its travelin down my into bottom, it really hurts more w...

lpatterson

•12 years ago

7 Replies

Cysts

Okay maybe a bit rude, but need to ask, I am having a bad flare up at the moment and have started noticing really bad painful cysts down below cant get...

Okay maybe a bit rude, but need to ask, I am having a bad flare up at the moment...

ebril

•12 years ago

4 Replies

Didnt go to plan

well went back to work yesterday and worst day ever laid up in bed aching and drunk feeling wish this would give me a break.got doctors at 430 see if they can...

well went back to work yesterday and worst day ever laid up in bed aching and dr...

lennox

•12 years ago

6 Replies

waiting

waiting on docs getting back 2 me whether i can get early appointment or not, wish the pressure inside my head 2 would go away i feel as of some1 standin on...

waiting on docs getting back 2 me whether i can get early appointment or not, wi...

lpatterson

•12 years ago

4 Replies

First day back to work

well my first day back after being of sick for 3 weeks and could of cried my heart out this morning, the drink feeling I have been getting was 10 times worst...

well my first day back after being of sick for 3 weeks and could of cried my hea...

lennox

•12 years ago

5 Replies

Lupus Awareness Project

Hello all! I am currently starting a project to raise awareness and to raise money which will be donated to Lupus UK. What I am looking for is people, you...

Hello all! I am currently starting a project to raise awareness and to raise ...

thepapergarden

•12 years ago

1 Reply

swelling and rash

I work in a farmshop full time making cakes and the lunches in the cafe end of the farmshop, so am on my feet all day 5 to 6 days a week. I have ben suffering...

I work in a farmshop full time making cakes and the lunches in the cafe end of t...

luupysue

•12 years ago

4 Replies

diagnosis for lupus

feeling really ill again i have had most if not all symptoms.....feel as though doctors dont listen, have been so ill past 2 weeks i cant even get out of...

feeling really ill again i have had most if not all symptoms.....feel as though ...

curtis

•12 years ago

9 Replies

pain

was wondering what pain relife people are using nothing i take helps

debby197

•12 years ago

7 Replies

Does discoid lupus cause lots of needing to wee? no pain just embarrassingly frequent and real nuisance during night

foxglove

•12 years ago

3 Replies

Back to work

I go back to work tomorrow after having 4 weeks off due to the exhauation / tiredness, / etc, This is the longest amount of time off in one go, due to Lupus,...

I go back to work tomorrow after having 4 weeks off due to the exhauation / tir...

lupydragon

•12 years ago

13 Replies

Colds...

Having lupus is anyone finding they get more than their fair share of colds, flu bugs and coughs? Over the last 2 months I've had a chest infection lasting 3...

Having lupus is anyone finding they get more than their fair share of colds, flu...

lindsay81

•12 years ago

3 Replies

Drunk feeling

why doi constantly feel like my head don't belong on my body, It drives me crazy and never get a answer, it feels like I have been drinking all night long...

why doi constantly feel like my head don't belong on my body, It drives me craz...

lennox

•12 years ago

11 Replies

another day in pain

i wish the sun would come out for a while, whilst the weather like that it makes ur joints worst grrr lol. hope ur all havin a nice bank holiday monday

i wish the sun would come out for a while, whilst the weather like that it makes...

lpatterson

•12 years ago

3 Replies

Will You Be ThereCardiff 13th May AGM

I am part of Lupus South Wales Group and we have the National AGM at the Merrott on Sunday 13th. I will be on the front Desk along with G & J from head...

I am part of Lupus South Wales Group and we have the National AGM at the Merrott...

janiceray

•12 years ago

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Rash

Do all lupus people suffer with the classic butterfly rash when out in the sun or can it be anywere the sun comes into contact also do you find that bright...

Do all lupus people suffer with the classic butterfly rash when out in the sun o...

Poppygayle

•12 years ago

9 Replies

My lupus journey

Hi All This is my first blog post. I'm so happy that I found this site!! At last I don't feel alone with all my worries and aches and pains! My journey...

Hi All This is my first blog post. I'm so happy that I found this site!! At las...

Maya23

•12 years ago

13 Replies

Pregnancy....

i was diagnosed with lupus 5 months ago and currently taking hydroxy tablets...i have been recently thinking about pregnancy, im 31 and would like to have a...

i was diagnosed with lupus 5 months ago and currently taking hydroxy tablets...i...

lindsay81

•12 years ago

3 Replies

Lupus & oral thrush?

I'm also suffering endless bouts of oral thrush since last October but as I've got both lupus & Sjogren's I've tended to put it down to the latter. Intrigued...

I'm also suffering endless bouts of oral thrush since last October but as I've g...

Black_Kat

•12 years ago

8 Replies

Does anyone have any experience with either Dewsbury hospital or Huddersfields new rheumatology consultant.

Have moved areas and wondered if i was better off moving to Dewsbury as havnt seen the new doc at huddersfield yet and not sure how good she is.

Have moved areas and wondered if i was better off moving to Dewsbury as havnt se...

kimmyw

•12 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2012

Peripheral Neuropathy

Anyone know of any child friendly Lupus information out there?

I have Lupus, Discord Lupus and Lichen Planus it's good to see I'm not alone but I need help??

Eye problems

Helping to bring about change

Has anyone gone vegan or eliminated sugar or gone chemical free to try to treat lupus? How did it work for you?

Brand new LUPUS UK Awareness Video

Has anyone experienced ulcerated ankles, very dry skin and very painful?

World Lupus Day

One can only dream...

pain

Cysts

Didnt go to plan

waiting

First day back to work

Lupus Awareness Project

swelling and rash

diagnosis for lupus

pain

Does discoid lupus cause lots of needing to wee? no pain just embarrassingly frequent and real nuisance during night

Back to work

Colds...

Drunk feeling

another day in pain

Will You Be ThereCardiff 13th May AGM

Rash

My lupus journey

Pregnancy....

Lupus & oral thrush?

Does anyone have any experience with either Dewsbury hospital or Huddersfields new rheumatology consultant.

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