Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,131 members • 28,467 posts

All posts for May 2012

What does unspecified SLE mean?

I have SLE as a diagnosis my recent letter from the hospital states diagnosis as SLE unspecified not sure what the unspecified bit means never had that after...

I have SLE as a diagnosis my recent letter from the hospital states diagnosis as...

erky

•12 years ago

2 Replies

back at the quaks

another chest infection and another pee infection again i seem ill all the time get no answers nobody seems to no nothing when i ask questions feel alone down...

another chest infection and another pee infection again i seem ill all the time ...

suemac

•12 years ago

4 Replies

can any 1 tell me how the hell do you get this rudy lupus

lizzy1963

•12 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Do you take Plaquenil and have difficulties breathing, swollen throat and tongue?

Since starting Plaquenil at the end of last year, I developed what felt like swelling round my throat, restricted airways and great difficulties with...

Since starting Plaquenil at the end of last year, I developed what felt like swe...

ChocolateTeapot

•12 years ago

2 Replies

SUPPORT GROUP/FUN DAYS>>>>

Hi i'm Angie and i'm new to this site, only joined yesterday! Was looking for some extra support and empathy as I was having a really bad few days and already...

Hi i'm Angie and i'm new to this site, only joined yesterday! Was looking for s...

cheeseyquaver

•12 years ago

20 Replies

dose any one know if you classed has disabled having fibromyaliga

lizzy1963

•12 years ago

2 Replies

i get DLA for lupus now got told i have fib wil this change things im worried

lizzy1963

•12 years ago

7 Replies

Fed up of new tablets making me feel so ill :(

After my rheumy telling me stop taking azathiprine after only 3 weeks he has now put me on Mycophenolate. I took one 500mg tablet after tea. it gave me...

After my rheumy telling me stop taking azathiprine after only 3 weeks he has now...

tiredmum

•12 years ago

11 Replies

I am always tied and I need help trying to get over this for the time being as I am in the middle of my exams please help

Rebekah_forever

•12 years ago

4 Replies

bleeding after passing urine

anybody else had bleeding after passing urine? happend for 3 days on and off,no infection,no pain,stinging etc,my gp belives it is to with my lupus nephritis...

anybody else had bleeding after passing urine? happend for 3 days on and off,no ...

poodlegal

•12 years ago

9 Replies

Is there any support group meetings near to me, South East London?

cheeseyquaver

•12 years ago

5 Replies

Bad start to my day.... Again!! :(

Woke up crying for the 3rd time in a row, feel lost and alone. Decided to look for help and found this site?! Need to know more about local support groups and...

Woke up crying for the 3rd time in a row, feel lost and alone. Decided to look f...

cheeseyquaver

•12 years ago

41 Replies

whoo hoo

i am finally got a app wiv consultant and plus got a interview for startin back 2 work 2moro. its all happenin now

i am finally got a app wiv consultant and plus got a interview for startin back ...

lpatterson

•12 years ago

1 Reply

Does any1 experience inflamation in the ribs?

As i keep getting severe pain around my ribs and painkillers don't help.I read that it can happen a few years ago but not sure if its true.

As i keep getting severe pain around my ribs and painkillers don't help.I read t...

Lisa78

•12 years ago

11 Replies

Weight gain from changing medication, please help......

My partner was on Myfortic Acid for 3 years before changing to Azathioprine. Around the same time she also changed her beta blocker from Atenolol to...

My partner was on Myfortic Acid for 3 years before changing to Azathioprine. Aro...

aliraz

•12 years ago

2 Replies

AGM World Lupus Day 20th May!

i have managed to secure tickets for the above AGM seminar in Warrington, Merseyside on the above day. This is the first time that I have been to one of these...

i have managed to secure tickets for the above AGM seminar in Warrington, Mersey...

Lulabelle

•12 years ago

1 Reply

Oh the joys of Lupus - Raynaulds and Cilblains anyone?

Hi All Yet another symptom Raynaulds plus chilblains lol! On my 2 big toes and middle toes - so sore and i am now on week 4. Been using the cream for just...

Hi All Yet another symptom Raynaulds plus chilblains lol! On my 2 big toes ...

Lulabelle

•12 years ago

9 Replies

Exhausted, dizzy and out of breath

I've had a rough ride today. I seem to have had a reaction to eating a small piece of cheese and strawberries and yoghurt last night - I woke up from a...

I've had a rough ride today. I seem to have had a reaction to eating a small pie...

Maya23

•12 years ago

13 Replies

think im being cloned !!!!

Just wanted to say a huge, massive, enormous thank you to you all for you support a few weeks ago when i was ready to throw in the towel. It is really...

Just wanted to say a huge, massive, enormous thank you to you all for you suppor...

RebeccaAnn

•12 years ago

2 Replies

Where do i go ??? :-(

Hello All... Thank you for all your support a few weeks ago when i was wondering what the point of it all was. The support was amazing and i am truly grateful....

Hello All... Thank you for all your support a few weeks ago when i was wondering...

RebeccaAnn

•12 years ago

3 Replies

consultant

have waited 3 years for a consultant, now have two and it seems one is miss diagnosing me again!!!!! does anyone else have problems with some medical staff...

have waited 3 years for a consultant, now have two and it seems one is miss di...

sabine

•12 years ago

5 Replies

Can you tell me your experiences of vasculitis,good or bad?

Hi all,if any have positive or negative experiences of vasculitis,multi system etc,please can you let me have your info,much appreciated,I am trying to gather...

Hi all,if any have positive or negative experiences of vasculitis,multi system e...

nanny4

•12 years ago

8 Replies

heart scan...

I was diagnosed with lupus in January and have an amazing consultant and lupus specialist nurse at the hospital....i have an appt for a heart scan in a couple...

I was diagnosed with lupus in January and have an amazing consultant and lupus s...

lindsay81

•12 years ago

9 Replies

Polymyalgia /temporal artritis

Has anyone out there been diagnosed with polymyalgia (PMR)or temporal artritis? This usualy affects people in their 60's however my mum was diagnosed with it...

Has anyone out there been diagnosed with polymyalgia (PMR)or temporal artritis? ...

going2Balright

•12 years ago

2 Replies

London Lupus Centre

Has anyone ever paid for private treatment at the London Lupus Centre? I am really considering going private because I am sick of getting prescribed an...

Has anyone ever paid for private treatment at the London Lupus Centre? I am rea...

gertie

•12 years ago

11 Replies

Rhesus Negative blood and Lupus

I am wondering if anybody knows if there has been any studies done on people who have rhesus negative blood and autoimmune diseases? I am rhesus negative...

I am wondering if anybody knows if there has been any studies done on people who...

gertie

•12 years ago

14 Replies

Fatigue

please can anyone tell me how they cope with the fatigue i get tired like any normal person but when i get lupus tired its very different. For me i feel so...

please can anyone tell me how they cope with the fatigue i get tired like any no...

Hidden

•12 years ago

26 Replies

Nurses with Lupus

I work part-time I find it difficult because I feel so tired all the time,I just wonder how other people cope or do they give up work ?

I work part-time I find it difficult because I feel so tired all the time,I just...

charlie007

•12 years ago

13 Replies

Think some consultants get their qualifications out of lucky bags!

Well, had Lupus/Connective Tissue Disease for 6 years now and was relatively settled on Methotrexate until last November when I started having breathing...

Well, had Lupus/Connective Tissue Disease for 6 years now and was relatively set...

AngelaW

•12 years ago

19 Replies

Well i gave Azathioprine a go....

unfortunately i only managed a couple of weeks. I was a bit naughty and started off on 25mg per week even though it should have been 50mg, everything...

unfortunately i only managed a couple of weeks. I was a bit naughty and s...

tiredmum

•12 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2012

What does unspecified SLE mean?

back at the quaks

can any 1 tell me how the hell do you get this rudy lupus

Do you take Plaquenil and have difficulties breathing, swollen throat and tongue?

SUPPORT GROUP/FUN DAYS>>>>

dose any one know if you classed has disabled having fibromyaliga

i get DLA for lupus now got told i have fib wil this change things im worried

Fed up of new tablets making me feel so ill :(

I am always tied and I need help trying to get over this for the time being as I am in the middle of my exams please help

bleeding after passing urine

Is there any support group meetings near to me, South East London?

Bad start to my day.... Again!! :(

whoo hoo

Does any1 experience inflamation in the ribs?

Weight gain from changing medication, please help......

AGM World Lupus Day 20th May!

Oh the joys of Lupus - Raynaulds and Cilblains anyone?

Exhausted, dizzy and out of breath

think im being cloned !!!!

Where do i go ??? :-(

consultant

Can you tell me your experiences of vasculitis,good or bad?

heart scan...

Polymyalgia /temporal artritis

London Lupus Centre

Rhesus Negative blood and Lupus

Fatigue

Nurses with Lupus

Think some consultants get their qualifications out of lucky bags!

Well i gave Azathioprine a go....

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive