Housework!: Think we should all be exempt from... - LUPUS UK

LUPUS UK

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Housework!

leo12 profile image
33 Replies

Think we should all be exempt from housework! Decided house was looking rather minging so out came the hoover and duster, half hour later im led on sofa with really painful knee and achy ankles and elbows. Oh well will just have to tuck into a bit of choccy. Hope you are all well. X x x

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leo12 profile image
leo12
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33 Replies
Lesi profile image
Lesi

Ditto I only have to stand for 10mins and feel like my back will collapse same with walking my hips lock. Has anybody ever managed to get disability allowance. I have never tried co what I have read very difficult . Also have COPD and Fibromyalgia x

leo12 profile image
leo12 in reply to Lesi

yes some have managed to get dla so you should try, you got nothing to loose. x

pattismith profile image
pattismith in reply to leo12

I applied 2 years ago, a wonderful man from CAB came and did a home visit help to fill in the whole application with me, l am now on High Rate Mobility and Middle Rate Care. He was so helpful and l keep in contact with him with any worries. Its not what you know its who you know Knowledge is Power. : )

Lesi profile image
Lesi in reply to pattismith

I will try that tomorrow. I applied for blue badge last year but didn't get it. The woman you see in kent is an occupational therapist. She said you need to be in wheel chair to get blue badge x

Lesi profile image
Lesi in reply to pattismith

I have just been looking up allowances, it looks like as I am over 65 can only get attendance allowance x

field profile image
field in reply to Lesi

I don't think this is the case. My stepmother has severe arthritis and is over seventy and she gets dla

Lesi profile image
Lesi in reply to field

Thanks, will have to look again. Just made me angry listening to Osborne yesterday. He made it sound like people who never worked now gets loads of benefits and it is going to stop. I nursed all my life + bought up 5 kids, never claimed benefit and now I need help they take it all away lol x

field profile image
field in reply to Lesi

I agree with you. I have worked from the age sixteen, even when I was studying I worked and paid tax and now that I need the help the goverment want to deny me that help.We should not have to fight for what is our entitlement, it is hard enough living with this illness, don't need the added stress. I agree that people who are perfectly healthy should work and not live a life on benfits, or have as many children as they want and expect the tax payer to foot the bill. however, we know that most of the money spent on benefits go towards subsidising low pay. Maybe if people were paid a living wage, they could actually live on and there was more support for mothers to return to work after having a child, there would be less claims for benefit and the benefit bill would decrease. But these goverments do not operate on common sense do they!

Lesi profile image
Lesi in reply to field

Just telephoned DLA and they have confirmed over 65 yrs can only claim AA. Possibly you stepmum claimed before she was 65 so continues to get it. I always seem to miss out xx

field profile image
field in reply to Lesi

yes you are right she has been getting it for some time now. Is it the same procedure to claim AA?

pattismith profile image
pattismith

You need a daughter like mine , she has OCD, she cleans her house from top to bottom daily, them comes and does mine at weekend for me, how lucky an l : )

leo12 profile image
leo12 in reply to pattismith

sounds good to me. x

pollyanna profile image
pollyanna in reply to pattismith

Oh can I borrow her please :D x

pattismith profile image
pattismith in reply to pollyanna

Ha ha as all children she comes at a price ha ha , when she comes 4 the weekend l feed her ! Shes now desperately trying to talk me into getting a new Dyson animal so she can use it here, not the normal request you get from a 23 yr old, but then she just loves to clean - dont know who she inherited that from !All my 5 children are wonderful with me and so understanding to my needs, maybe l didnt do such a bad job of bringing them all up by myself eh ? : )

pollyanna profile image
pollyanna in reply to pattismith

Dear pattismith, I have a dyson animal :) I even brought a pink Hetty, thinking it may inspire, but alas no :( I have been waiting for my daughter to hoover for 3 days now!!!! God alone knows what she will do when she goes to uni!!! Although she informs me she can make supernoodles! and has no idea what all those bottles of stuff are under the sink!!! Well done you :) x Have a good day :) x

pattismith profile image
pattismith in reply to pollyanna

Don't lose faith , my OCD daughter of 23 become that way after 3 years at Uni, it does them the world of good to be independent, she may come back a Master Chef as well as a degree in her chosen subject ha ha . : )

pollyanna profile image
pollyanna in reply to pattismith

ha ha this gives me some hope then!! I will wait with baited breath :)

pattismith profile image
pattismith in reply to pollyanna

My daughter is now learning to drive, and when she passes her test she wants to move back home so she can look after me more, bless her, l am so lucky with my 5 wonderful children, maybe l didn't do such a bad job of bringing them up on my own with good old fashioned values eh ?

pollyanna profile image
pollyanna in reply to pattismith

I think you have done a wonderful job :) and you are obviously very proud of your children and bringing 5 children up on your own, your are obviously an amazing Mum, take care and have a great day x

pattismith profile image
pattismith in reply to pollyanna

Thanks for that hun, ive had my moments with them all ha ha , l have always tried to follow in my parents footsteps and examples, they were terrific parents to me and my brothers and sisters. Enjoy this wonderful sunny day. : )

chrissiij profile image
chrissiij

Pattismith, I salute you! I can't do full housework every weekend so one weekend I will Hoover and the next I will clean appliances. My other half is useless around the house so it is up to me. I need a cleaner!

Lesi profile image
Lesi

Thank you everyone for your help. My daughter has job to clean up after two children, and yes my husband is useless. Yes I also have a very lazy husband. If you can't see it there's nothing wrong. He has had hernia op recently, now he realise the pain I went through when I had hysterectomy 25 yrs ago. Poor men.

tintin49 profile image
tintin49

I keep downstairs clean but my own room is bad now I can hardly change my bedding and hovering is hard as I cannot brng the hoover up. if I do bring it upstairs I have no energy to push it. food prep is hard as I have really bad hands and arthritis in my knees and shoulder.

I got the lowest rate of care after appeal but £20 weekly does not really go far. I was so traumatised by the appeal in London and the outcome I am petrified of doing it again. I was very very poorly after. just writing this is making me cry and feel sick

pattismith profile image
pattismith in reply to tintin49

Did you have any help with your appeal ? A wonderful gentleman from the CAB came to my house to help me fill in my first application for disability and because of his help l could answer the questions in detail, its so important to get the correct advice, give them a call . Good Luck , keep me posted of your progress . : )

rlupus profile image
rlupus

Hi Lesi

You must claim for DLA well its PIP from now on i have had to battle for over the last 20 years and have been award it for life but thats not true as all people who are on DLA will have to reply for the PIP that comes into place this year its so frusterating as it was only sorted last May but i did get a letter saying they would not be in contact till 2015. so have some breathing space yet again. As for who ever told you that you have to have a wheel chair for a blue badge its rubbish i have a blue badge and i am not in a wheel chair. I have lupus , fibro, chronic obstructive airways , and hughs syndrome, and take over all 26 tablets a day,and life is a struggle but have to keep going i just do what i can , (not a lot) but my family understand, Anyway good luck.

keep well

Rachel

Lesi profile image
Lesi in reply to rlupus

When I applied for blue badge last time I was told all this rubbish. There are places I like to go that are down steep hills and only parking by the theatre is disabled parking. I have told them on the form that is against my human rights dictating where I can and cannot go.

Lesi

Lesi profile image
Lesi in reply to rlupus

My consultant has also said I may have Hugh's syndrome. That will be checked at my next appointment xx

pattismith profile image
pattismith in reply to rlupus

Agree with you , its disgusting, when people with a genuine disability ( visible or not ) dont seem to be able to get the correct help and advice , seems to be the lazy layabouts that get the best deal these days. Help is out there but you have to know where to look, Knowledge is POWER esp when you have a lifelong illness .

hazelHollingsworth profile image
hazelHollingsworth

Re-cleaning. A friend of mine was going through a rough time financially and I said I would pay her to do a bit of cleaning for me, she comes once a week and does 1 room top to bottom, then the week after another room and so on. It helps her and me and neither of us stress so much. Is there any family or friends that would help in the same way or a friend who is finding funds low who would jump at the chance. I pay her £14. for two hours, but it would be up to you what you could afford. I don't drink and stopped smoking years ago, don't get out much and this is My treat for Me.xx

Lisafindlay profile image
Lisafindlay

I have raynaurd on my fingers at the moment n i dont know what it call but my finger tips look horrible n hurt so much so sometime housework is nightmare, i used to hv pain on my knee n most of my joints but thanks god it get control with planequil n etodolac but with sle n lupus anything can happened. Esproponol doesnt help this time for my raynauds...

rlupus profile image
rlupus

Hi Lesi

If you get high rate DLA you will be able to get blue badge they now charge £10, also you will get free car tax a few of my friends who have lupus did not no about this as they do not always tell you , i had to ask many years ago thats how i found out. I am having a bad today very cold and painful joints and feeling very sick and tired hope it goes soon, I am fed up with being ill and having no energy to do anything life is tuff at the moment, Take Care

Rachel

pollyanna profile image
pollyanna

Hi, I very recently was awarded DLA, so yes it can be done! As for housework! I used to be a clean freak! Hubby always said I had OCD, although I didn't I do like things clean and tidy! However, now although I still like everywhere clean and tidy, I am not able to do it! If I ask my hubby to hoover, he will, he will do what ever I ask! However, I think he just does a rubbish job, so I dont ask him again!!!! (Tactics me thinks!!!!) I have had to learn, that I do not have to hoover and polished and mop floors everyday! I still get a great sense of achievement when I have done something, and yes maybe I cant do anything else for a few days but hey ho, To be honest, I just no longer wear my glasses in the house!!!

pattismith profile image
pattismith

Brilliant im with you on all of that lol : )

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