hi: not been on here for a while just wnted to say... - LUPUS UK

LUPUS UK

31,597 members28,006 posts

hi

lupusjon profile image
18 Replies

not been on here for a while just wnted to say hi hope you are all bearing up its been over a year since my mitral heart valve op (repaired co of lupus intrusion to heart and after 2 years of work im now back full time there is hope dont give up x

Written by
lupusjon profile image
lupusjon
To view profiles and participate in discussions please or .
18 Replies
mstr profile image
mstr

Hi, good to hear your op was a success and you are back on the mend. It's good to hear positive news, it's amazing what they can do now:)

lupusjon profile image
lupusjon

thankyou mstr :)

Purpletop profile image
Purpletop

Wow, way to go!! Welcome back and I hope you're going to be a while with us, we can all benefit from your experience and positivity. How are you feeling generally with the lupus and the new valve?

lupusjon profile image
lupusjon

not to bad good an bad days try to get weaned of the steriods an azo very slowly tho..thanks purpletop :)

tintin49 profile image
tintin49

well done and thanks for keeping usinformed. lots of hugs x

lupusjon profile image
lupusjon in reply to tintin49

thankyou tintin :) x

roobarb profile image
roobarb

Thanks for your positive post lupusjohn. Glad to hear you are doing so well. Love the car!

Sher78 profile image
Sher78

Hiya lupusjohn! Always brilliant 2 hear when some1's doing so well well & kicking lupus arse ;-). Good on ya!

lupusjon profile image
lupusjon

thankyou roobarb and sher78 its a struggle sometimes just gotta try stay posative an kick lupus up the arse :)

MandieR profile image
MandieR

Way to go!!!! congratulations and fantastic news.

we all love to hear something positive.

sandwiches profile image
sandwiches

glad to hear that you are well after your op. And that you have kept your job. What symptoms did you have when you was diagnosed? was one of them indigestion and gurgling in your chest?

lupusjon profile image
lupusjon

had five emergency admits with mutiblood clots in lungs pluresy fatigue and racing heart a small valve leak discovered then ..but got worse with time and the right lung was filling with blood ..:( sandwiches..

thanks mandleR

caninecrazy profile image
caninecrazy

evening lupusjon, youve done amazingly well to stay strong and fight lupus and its problems its given you! love your car! keep in touch with all of us on here x

lupusjon profile image
lupusjon

thanks caninecrazy :)

behappy1 profile image
behappy1

Lovely to hear that you are being positive despite what you've gone through. Its inspiring x

lupusjon profile image
lupusjon

thankyou fuzzy rudd :)

What a fighter great to hear positive feedback : ).

lupusjon profile image
lupusjon

thanks ferrari :)

You may also like...

Hi

so many things happening to me for a while now . She wanted to give me something for my raynauds as...

Hi

have been taking plaquenil for about two months but could not stand the lucid dreams and night time...

Hi

and back to gait problems. Is this type of change, over 20 years something that people with lupus...

Hi Fevers related to Lupus

centigrade every week I have been firstly to my local hospital then during this last year...

Hi guys only me 🤦🏼‍♀️❤️

disappear after anything from 4-5 days to a few weeks I wouldn’t say it’s painful more hard work 😓...