I have MCTD... They won't commit to Lupus yet... What bloods have you had done? My CRP has come down to 5.6, but I still have terrible joint pain. I too have a red rash on my face and at times finger joints. I'm shattered all the time.
Hi, I have SLE Lupus, a very bad case of it. on the mend now but know alot about it. you need to get a anti DNA blood test, its quite an expensive one to do, but they should do it, if it comes more then about 20 then there is a problem, depending on the number, my worse was when i was at over 100 ! i lost my long hair, i also had severe brain damage and alsorts wrong with me.
if needed to, contact NHS direct and then you will be in hsopital if its that bad, and then a rheumatologist will then specifically see to you hopefully, and diagnose you. many doctors and nurses havent even got a clue on what lupus is!
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