afternoon my fellow lupies: hi all just got back... - LUPUS UK

LUPUS UK

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afternoon my fellow lupies

purpleprincess profile image
2 Replies

hi all

just got back in from havin a special xray, so am now hiding out in my bedroom because of radioactive stuff they injected into me..hope you are all doin ok (as well as you can be having lupus anyway lol)

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purpleprincess profile image
purpleprincess
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PeterWoolnough profile image
PeterWoolnough

Maybe they are turning you into Superwoman....how great would that be, jokes aside, what was the xray for? And if I am being to nosey, then sorry in advance...

purpleprincess profile image
purpleprincess

hi, nah you not bein nosey, am a pretty open book...back in 97 when i had an almost fatal sle flare i had large doses of iv steroids, which resulted in my hips getting replaced in 01..recent regular xray showed they are wearing out so i gonna need them re doin in the next few months...the xray was one where the inject radioactive isotropes into me then take the xrays 3 hours later to show blood supply and daage more clearly than with a basic xray..its a bit crap am in pain constantly at the moment, and although i recently started seein someone i am effectively a single mum, and i worry about the effect this has on them...esp when my 14 yr old finds me sobbing in the bathroom :(

as for superwoman thing, some ppl i know would say i am, but personaly i would say i am defo just human, and have days where i hate everything about my life, i hate bein 32 and unable to put socks on without bein in pain, and not being able to go out dancin like i used to be able to, or take kids out for day,without limiting thier fun because of my problems...had a breif look at your profile, seems you not exactly had it easy either..lupus (and other 'invisible' illnesses ) are evil, and i feel for anyone who suffers with them

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