Hi. I was diagnosed with lupus in June and am on steriods and hydroxychloroquine. In 10 days time I would have been on hydroxy for 3 months. My consultant said that I should feel significantly better when the hydroxy starts to work and that should be between 2 - 3 months. I don't feel significantly better, at best I would say i'm functioning rather than living.
I can handle the pain and discomfort but this fatigue is destroying my life. My husband is amazing but I want him to have a great life and this isn't one!
Does anyone have any advice or experience on how long the hydroxychloroquine can take to work. I did get my steriods down to 8mg daily but had to put them back up to 10mg. I'm due to half my dose of hydrox in 10 days and so worried things will get worse!