Osteoneucrosis: I am 28 years old and diagnosed... - LUPUS UK

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Osteoneucrosis

AnnaMo profile image
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I am 28 years old and diagnosed with SLE Lupus 2 years ago after falling unwell, and needing a blood transfusion. I have had symptoms of SLE all my life but fought it, thinking it was all in my head. Even as a child if I felt unwell, I was made to go school and get on with it!

I trained and became a PE teacher 7 years ago, and enjoy the profession...apart from the coursework marking :-) I love exercise, training for half marathons, exercising twice a day, cycling to work, running fitness classes etc. Last year I sustained a stress fracture of the first metatarsal, but thinking it was just an ache, I left it. Finally giving into the pain I saw my GP...the MRI scan shows I have a stress fracture and osteoneucrosis. I am in an air cast boot and only allowed to have minimal weight bear!

5 months on and I am still in this boot.... ahhhhh no exercise and starting to feel rubbish. I am awaiting another MRI scan. I am going out of my mind....I thought I had everything under control, exercise was my therapy! :-(

Has anyone else experienced osteoneucrosis? stress fractures?

The consultant said I would never run again...

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AnnaMo profile image
AnnaMo
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chrisj profile image
chrisj

Well I hope you do and prove him/her wrong!! :)

No experience of stress fractures or osteoneucrosis, in fact I've never heard of it. I have osteoarethritis which is a sort of stress, or wear and tear as they call it, and sciatica which causes terrible pain if I'm not careful with my back, plus a small scoliosis mid spine...

I can imagine how hard and frustrating it must be for you. Isnt there excercise you can do that doesnt need you to be on your feet?

chrisj profile image
chrisj

Had a quick read on osteonecrosis and it sounds pretty serious, have they offered you surgery? or any sort of treatment to get back on your foot properly??

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