Am new to this site - was initially diagnosed with discoid lupus in '93 and had various symptoms since,officially told it's systemic this year though no major organ involvement.

I have been putting off writing on any sites as it doesn't sound like I am as bad as everyone else - have been denying to everyone how bad I DO feel though!!!!

My days are up and down though - now been put on anti depressants and thought it might be useful to chat to like minded people.

Debbie x

4 Replies

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  • Hi Debbie,

    I hope that you do find it useful chatting to some like minded people on here. It's a very friendly bunch. Let us know if you ever need anything.

  • Welcome, it helps to know there are others out there like us Lupsters!!!

  • Hi Debbie,

    I was diagnosed with discoid lupus at 16 which also developed into SLE. I am now 46. Listening to everyone else I too feel like I am better off than most but having had the steroid injection I now realise how unwell I have been feeling for the last few years. Dont sell yourself short.

    Take care of yourself :-)

  • I was diagnosed with discoid lupus and systemic lupus in '97 and have no major organ involvement, though. I hope you feel that you can discuss your condition on here. I also am reluctant to discuss Lupus with friends as they cant possibly begin to understand how you feel. It is great on here that you dont have to explain things from the very beginning to people. If you want to ask anything, feel free to post me :) xx

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