Lupus Awareness Project: Hello all! I am... - LUPUS UK

LUPUS UK

31,708 members28,077 posts

Lupus Awareness Project

thepapergarden profile image
1 Reply

Hello all!

I am currently starting a project to raise awareness and to raise money which will be donated to Lupus UK.

What I am looking for is people, you lovely people, to email me your positive messages, memories about your experience with living with Lupus, or your experience with your friends/family members who have been diagnosed.

I want this book to be a go to for those who are having a bad day with Lupus - for you to read the positive comments and to hopefully make your day a bit better.

Here is the post about the project which I blogged about the other week;

'Last year, someone who I love dearly was diagnosed with Lupus. She has had a tough year but being the brave and beautiful person she is, she has stayed strong and is dealing with the disease incredibly well.

Dedicated to her, my hero, those whose lives have also been touched by Lupus and to raise awareness about the disease, I will be creating a set of journals marked with a butterfly (an international symbol for Lupus). The journal will be interspersed with messages and memories of those who are living with Lupus and those who have friends/family touched by the disease.

Money made from sales of the books will be donated to Lupus UK, an exceptional charity who support those who have been diagnosed and those who are approaching diagnosis. Please do have a look on their website at the amazing work they do: lupusuk.org.uk '

If you are interested in sending me something please contact me: thepapergarden@live.com

If you would prefer to have an anonymous comment in the journal, no problem, please state in your email.

Stephanie xo

Written by
thepapergarden profile image
thepapergarden
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Samx profile image
Samx

My gorgeous, caring sister guys, please send her your comments :) x

You may also like...

Lupus awareness fundraising evening

Can't remember if I have written recently to remind you all about the lupus awareness eve on may...

Lupus Awareness and Fundraising at Bannatynes - Update.

the members of course have been generous with their donations of books and money.👍🏻👍🏻 Most of...

LUPUS UK is seeking a case study for a Lupus Awareness Month press release

these criteria, please email paul@lupusuk.org.uk with an outline of your story about your...

Lupus party. Raising awareness and funds for lupus uk

to do a little talk on living with lupus. May try and include a short lupus quiz. Just to make sure

National radio awareness of Lupus

Lupus awareness got some air time on UK Radio 2 today. Here's the link to the programme on iplayer...