Hi I have just joined!: I have been on Methotrexate... - LUPUS UK

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Hi I have just joined!

lilstumps profile image
8 Replies

I have been on Methotrexate Injections for over a year and have just been increased. I am getting very bad side effects & really feeling unwell. Can anyone give me some ideas or let me know if they are experiencing the same. I am going to be referred to a different hospital as my local one has done nothing for the last 6 months.

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lilstumps
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8 Replies
magicmarker profile image
magicmarker

hello, what kind of side affects do you suffer?? I too, am on metho,injections 10ml once a week. And I know the side affects seem to be worse than my lupus.

yuck's

lilstumps profile image
lilstumps in reply to magicmarker

I was on 15 ml once a week now it's 20 ml. Don't know where to start with the side affects but here's a few that are the worse: Headaches & Migraines, Depression, Ulcers in my mouth & sore gums, Unexplained bruising, Back & stomach ache, All joints constantly aching & No appetite but very thirsty. Hope this helps there is quite a few more aswell. Thanks.

Welcome to this Lovely place,,hope you will feel very much at home,,,i do! :) x

lilstumps profile image
lilstumps in reply to

I'm hoping so as I don't have anyone to talk to or moan at lol.

Thanks for making me feel welcome x

Pammy76 profile image
Pammy76

Hi welcome, I hope you will find this site useful and I hope you will find some comfort here x

lilstumps profile image
lilstumps in reply to Pammy76

Hi thank you for making me feel welcome, I hope this site is useful as I have no-one else to talk or moan at!! x

Amethyst profile image
Amethyst

Hi lilstumps, I too had terrible problems with Methotrexate which only got worse. I am now on Mycophenalate Mofetil (aka MMF) which is so much better. I have been on it for 8 years now and although I have had some bowel problems, it is so much better than when I was on Methotrexate. Please go to a new rheumy as there are better and more modern drugs available. Really hope this helps x

lilstumps profile image
lilstumps in reply to Amethyst

Thank you so much for answering my question. I really have a lot of stress lately what with one thing or another & i'm sure that doesn't help! I have already booked an appointment for Friday with my GP and going to get her to refer me to a different hospital. My local one is doing nothing! Seems all they want to do is blood tests, cortisone injections & steroid injections in my knees! (Yes they are very painful!) I dont want to keep being prodded & poked or i'm going to turn into a pin cushion!!

Thanks again & I will ask my GP about the drug you are taking x

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