need advice : hi I’ve had lupus a long time... - LUPUS UK

LUPUS UK

32,135 members28,469 posts

need advice

Scotchgal profile image
4 Replies

hi I’ve had lupus a long time, recently had the normal joint pain all over and stuff but I have this weird feeling on my head, dizzy faint and bad nausea, anyone else had this

Written by
Scotchgal profile image
Scotchgal
To view profiles and participate in discussions please or .
4 Replies
LalSD profile image
LalSD

Hi, I am sorry to hear this. I felt like that for quite a few months, the. Suddenly, I got better after 8 long months. Although I did not see any doctor assuming it was lupus related, I can empathise with the symptoms. Hope this helps. L

DogHospiceMom profile image
DogHospiceMom

I have. I was sent for rehab therapy for vertigo and it worked. This was after an MRI to rule out anything more serious.

Stills profile image
Stills

note my diagnosis is Adult onset Stills Disease which for me manifests as rheumatoid disease with some symptoms similar to Lupus like face rash for example. It’s autoimmune and I have other AI things like Lichen Sclerosus. Yes to your question my head feels like that all the time and I’m not on any medication that causes it. Read my bio for more information if you wish. Orthostatic hypotension was given as a cause , then BPPV and I have cluster migraines and terrible sporadic stabbing pain behind my ear into my jaw which is so severe it stops me in my tracks. Anyway Prochlorperazine has been prescribed to counteract vertigo but the feeling of a helicopter landing in my head persists and MAY be a thyroid issue as other symptoms linked to thyroid disease are emerging and it’s possibly AI thyroiditis.

Scotchgal profile image
Scotchgal

I got blood results and white blood count is low

Not what you're looking for?