When I was much younger I went through a treatment to desensitize me to UV light. The dermatologist said it was likely I had discoid lupus. This was maybe 15 years ago.
Since then I've been diagnosed with ME, fibromyalgia. I have joint pain but blood tests for arthritis come back negative. I wake stuff and sore every day... Unable to bend my fingers... X-rays and scans snow nothing wrong with my hands.
I have ibs, I get pancreatic pain sometimes ( had an ambulance called by the doc once when he saw the pain level) - intermittent breathing problems with my nose, it feels like there's a steel band around my chest. This is a good day!
I randomly came down with neuralgia in my face and feet this year.
I haven't noticed the facial rash in quite a few years but over the last week it's come back and the joint pain and muscular pain in having all over is unreal.
I went through a barrage of blood tests a couple of years ago, my WBC is always high and they gave decided this is just normal for me.
I moved area about ten years ago and they treat every issue I have as unrelated. I'm so confused at this point if it could be lupus or not. I really want to march in to the doctor's with a list and just say... You can't simply just blame this on fibro all the time.