For Stormy, Horsewhisper and all those who need c... - LUPUS UK

LUPUS UK

31,597 members โ€ข 28,006 posts

For Stormy, Horsewhisper and all those who need cheering up.

Spotty-ewe profile image
Spotty-ewe
โ€ข41 Replies

Stormy has asked me to tell everybody on the forum how much she misses you all and misses being on the forum herself, but she sends you all her love. She is really struggling at present with the cardiologist phoning her 3 or 4 times per week. She has a new heart monitor which is radio linked to the cardiologist so I hope and pray he is able to help her. She is not up to staying on the computer for long so is not able to write replies but she reads the posts as and when she can so is keeping in touch that way. She is due to have an ablation as soon as she is up to it and then possibly a pacemaker after that.

I hope this picture makes you smile Stormy and I hope it cheers you up Horsewhisper after the blow you received with your new and added diagnosis.

For anybody needing to be cheered up I hope this answer to the heatwave some of you are experiencing makes you smile.

With love and hugs to everybody. ๐Ÿค—๐Ÿ˜˜xxxx

Written by
Spotty-ewe profile image
Spotty-ewe
To view profiles and participate in discussions please or .
Read more about...
41 Replies
โ€ข
CecilyParsley profile image
CecilyParsley

Fabulous photo Spotty. I wish dear Stormy the very best of luck with her recovery too xxx

Spotty-ewe profile image
Spotty-ewe in reply to CecilyParsley

Thank you Cecily. Iโ€™m sure your good wishes will cheer Stormy up. ๐Ÿ˜˜๐Ÿค—x

misty14 profile image
misty14

Lovely, thoughtful post spotty. Do give stormy my best wishes for a speedy abalation and recovery. She really is having such a tough time. Ive replied to horsewhisper's lovdly post as im sorry too that shes having it tough just now.

Thank you for your lovely messages which i will catch up on during the week. Busy with my 'cutie pic' this week which is wonderful. Hurrah for the forum!.

Hope you are feeling better too dear spotty. Keep safe. Xx๐Ÿค—โค๐Ÿค—

Spotty-ewe profile image
Spotty-ewe in reply to misty14

Thanks Misty. Iโ€™m sure Stormy will read the replies, she just isnโ€™t up to replying. She is indeed having a very tough and painful time and a full diagnosis is still not forthcoming. Very worrying for her. The forum is such a caring and loving place to be which is why she misses it and all the lovely members so much. I totally understand that too.

Hoping you are recovering well yourself now Misty and getting the pain under control. ๐Ÿ™๐Ÿป Loved your โ€˜cutie picโ€™ post and the message of hope it conveyed too. Wonderful. ๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป

Looking forward to a catch up when you have time and feel like it. Until then take care Misty. ๐Ÿค—๐Ÿ˜˜xx

KayHimm profile image
KayHimm

Tell Stormy I am thinking of her. I miss her and her kind heart. Rest and reflection is the best medicine now.

That photo is precious! The dog looks so proud that he can help. ๐Ÿ˜…

๐Ÿ˜

Spotty-ewe profile image
Spotty-ewe in reply to KayHimm

Iโ€™ll tell Stormy Kay although Iโ€™m sure sheโ€™ll read the replies herself. Sadly she is still undergoing tests and monitoring so a full diagnosis doesnโ€™t appear to have been given and she is suffering and struggling in the meantime. Sheโ€™s had an addition to her medication so I hope and pray it will give her some relief from her symptoms until they work out exactly what the problem is and are able to carry out her ablation. All very worrying for her.I hope you are keeping okay yourself.

Glad you liked the pic. It certainly shows why dogs are referred to as a manโ€™s best friend. ๐Ÿ˜‚๐Ÿ˜‚. Take care Kay. ๐Ÿค—๐Ÿ˜˜

MEGS53 profile image
MEGS53

Hope you feel better soon, Stormy.

๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜

TeaandToast94 profile image
TeaandToast94

Oh what a scary time for Stormy. Itโ€™s always so stressful when people canโ€™t give you answers or plans quickly isnโ€™t it. Hopefully the monitor yields answers quickly for treatment going forward.

Love the photo. Dogs really are a humans best friend arenโ€™t they ๐Ÿฅฐ

Spotty-ewe profile image
Spotty-ewe in reply to TeaandToast94

Yes, I suppose most of us here know what that is like - very stressful. It is the not knowing that is the killer. As you say hopefully the monitor will throw some light on Stormyโ€™s problems and allow a treatment plan to begin asap. Glad you enjoyed the photo T&T of one of our best friends only too happy to help! ๐Ÿ˜‚๐Ÿคฃ Take care. xx

Kevin53 profile image
Kevin53

Best wishes and love to Stormy ๐Ÿ’œKevin

Spotty-ewe profile image
Spotty-ewe in reply to Kevin53

๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป ๐Ÿค—

Horsewhisper profile image
Horsewhisper

What a lovely pic Spotty! Certainly this doggy is this manโ€™s best friend! Hope Stormy enjoys the pic too and gets some answers soon. Thoughts and prayers to Stormy at this tricky time ๐Ÿถ ๐Ÿšฟ ๐Ÿ™๐ŸŒบ๐Ÿ˜˜๐Ÿค—๐Ÿ˜˜

Spotty-ewe profile image
Spotty-ewe in reply to Horsewhisper

Hoping you are feeling a little better now too HW and still managing to give the larder a body swerve! ๐Ÿ˜‚ Take care. ๐Ÿค—๐Ÿ˜˜x

rosebud52 profile image
rosebud52

Good morning Spotty-ewe, I wish Stormy the very best and send โค and hugs and wish the the very best also to Horsewhisper โค xxx

Spotty-ewe profile image
Spotty-ewe in reply to rosebud52

Good morning Rosebud. Many thanks for your lovely wishes for Stormy and Horsewhisper. I hope you are keeping okay. Take care. ๐Ÿค—x

Maddymay65 profile image
Maddymay65

Fabulous picture. I hope Stormy is having a better day , sending positive thoughts and a huge hug ๐Ÿค—Thinking of her M x

Spotty-ewe profile image
Spotty-ewe in reply to Maddymay65

๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ’๐ŸŒน๐ŸŒผ๐ŸŒธ๐ŸŒบxx

Good wishes to Stormy x

Spotty-ewe profile image
Spotty-ewe in reply to

๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐ŸŒบ๐ŸŒผ๐ŸŒธ๐Ÿค—x

GloomyEeyore profile image
GloomyEeyore

Love that picture. Could do with that pooch here at the moment. Sending good wishes and hugs to Stormy and Horsewhisper. Hope that they both get all the answers and help they need. Xx ๐Ÿ’ ๐ŸŒธ ๐ŸŒบ

Spotty-ewe profile image
Spotty-ewe in reply to GloomyEeyore

Glad you enjoyed the picture GE. It is cold and wet here today in Dumfries and Galloway so send some warmth this way please. Iโ€™m sure Stormy and HW will appreciate your lovely message. Stay safe GE. ๐Ÿค—๐Ÿ˜˜xx

DJK99 profile image
DJK99

Love it! Thanks Spotty! Please send a gentle hug and love to Stormy for me. And thanks so much for keeping us updated. Hope you are doing as ok as possible too Dx

Spotty-ewe profile image
Spotty-ewe in reply to DJK99

I will do D. Iโ€™m not bad at present thanks. I started taking an iron tonic after a massive nosebleed which resulted in cauterisation at A&E and am at last beginning to get a bit of energy back. ๐Ÿ‘๐Ÿป I hope you are keeping ok? Take care D. ๐Ÿค—xx

DJK99 profile image
DJK99 in reply to Spotty-ewe

Yikes Spotty. Scary. Did they say why that happened? I have (sorry) had them all my life but much much better on methotrexate. I think it's due to the sjogrens actually... Have you got that too? Bit embarrassing just sitting in a pub or walking up the road (can remember these occasions) and suddenly the floodgates open! Not v nice for others to see either I guess... Oh dear. Poor you. Did they bung your nose up with lint afterwards? I remember a v nasty hospital chap really hurting me with that when I was a child... humph. Funny the things one remembers..!

I do hope you're iron levels improve. Tons of watercress every day is also a very natural increaser of iron.... worked brilliantly for my ma when pregnant with my brother.. she was v anaemic... but my pa wouldn't let her take the meds they gave.. but made her eat watercress every single day. When she went back to the docs for another blood test he said "wow, those pills have certainly worked!" - haha... she never said . I eat a bag of it a week most weeks - sometimes two!

Big hugs to you and you take care too xx

Spotty-ewe profile image
Spotty-ewe in reply to DJK99

It was scary D as my nose bled profusely for 40 mins non stop. I soaked 4 t-towel sized rags I had. Like you, Iโ€™ve always been prone to nosebleeds since a child having to borrow my male teachers handkerchief on one occasion but thankfully never came across a nasty hospital worker like you encountered. How horrible for you! But this nosebleed was the worst Iโ€™ve ever had. I had my left nostril cauterised in October because of recurring nosebleeds and then this was my right nostril. My BP was up on this last occasion but the doctor at A&E who did the cauterisation said it wasnโ€™t up enough to be worrying. ๐Ÿคท๐Ÿผโ€โ™€๏ธ Yes I do have Sjogrenโ€™s so interesting you think they are connected. Thanks for the tip about watercress. ๐Ÿ‘๐Ÿป I love the story about your mother and the iron tablets and watercress.๐Ÿ˜‚๐Ÿคฃ Brilliant! Hugs back to you D. ๐Ÿค—๐Ÿ˜˜xx

DJK99 profile image
DJK99 in reply to Spotty-ewe

Oh my goodness! Thatโ€™s rather serious eh?! I do hope the cauterisation works Spotty. Well my nose is v dry crispy inside these days, since the first set of punctal plugs.. whereas before i had constantly (embarrassingly) running nose. Any of that ring a bell?? X

Spotty-ewe profile image
Spotty-ewe in reply to DJK99

Iโ€™ve only had 1 minor bleed since the last cauterisation so hopefully it was just a glitch. ๐Ÿ™๐Ÿป My nose is v dry and crispy inside like you described and only ever runs if Iโ€™ve eaten something hot especially if it is a bit spicy. ๐Ÿคท๐Ÿผโ€โ™€๏ธ But dry and uncomfortable is much more common. Iโ€™ve never had punctual plugs. Are they for your eyes?

DJK99 profile image
DJK99 in reply to Spotty-ewe

Hey Spotty - yes plugs go in tear ducts(?) - first time Iโ€™ve had them in middle of bottom eye rim. Might have them in all ducts if need be. Wld rather not as can feel them.. although most people donโ€™t aparently. Guess theyโ€™re bit inflamed. Itโ€™s because having eye balls stuck to eye lids all night despite hylo night and using carbomer and visuxl all day every two hrs - and drinking water every 15 mins! Has this been discussed with you? X

Spotty-ewe profile image
Spotty-ewe in reply to DJK99

No Iโ€™m lucky as I donโ€™t appear to have Sjogrenโ€™s as bad as you. I hope you wonโ€™ t need the extra plugs when you can feel them. Iโ€™m so sorry you are suffering all this. I just have the dry eyes and dryness in areas that should be moist. I hope the plugs make a big difference for you D and that perhaps over time you wonโ€™t notice them as much. ๐Ÿ™๐Ÿป Take care. ๐Ÿค— xx

DJK99 profile image
DJK99 in reply to Spotty-ewe

Oh thatโ€™s good Spotty. Iโ€™m ok ta.. itโ€™s just all of it together... the systemic fun & games ;). Iโ€™m much better than so many on here. But yes, would like it to get a bit better really. We see. Hope your snoz continues to behave! Big hugs to you xx

Spotty-ewe profile image
Spotty-ewe in reply to DJK99

Thank you D. Big hugs back to you too. ๐Ÿค—xx

April2018 profile image
April2018

Thank you for your kind post Spotty. The photo warmed my heart! And Stormy I wish you a very swift recovery, hope to hear from you soon. Xx

Spotty-ewe profile image
Spotty-ewe in reply to April2018

Thank you April. Iโ€™m so pleased you enjoyed the photo too. ๐Ÿ‘๐Ÿป๐Ÿค—๐Ÿ˜˜x

LTLL profile image
LTLL

Great piccy, and all the best to Stormy and yourself, keep as well as you can and keep smiling ๐Ÿ˜Š

Spotty-ewe profile image
Spotty-ewe in reply to LTLL

Many thanks L and I hope you are keeping as well as can be too. ๐Ÿ™๐Ÿป Take care. ๐Ÿค—xx

svfarmer profile image
svfarmer

Thanks for the update Spotty, I was only thinking the other day about Stormy - please send her my best wishes - ps. Love the pic xx

Spotty-ewe profile image
Spotty-ewe in reply to svfarmer

I will SV. ๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป Glad you like the pic. ๐Ÿค—xx

DRunnerchick profile image
DRunnerchick

Thanks for this! We are in the midst of a major heat wave. Should break tomorrow and then back this weekend up to 107. We are in the PNW so we donโ€™t all have A/C and makes it quite miserable for people. Hereโ€™s hoping ๐Ÿคž๐Ÿผ it doesnโ€™t lead to a bunch of ๐Ÿ”ฅ fires.

All my best to Storm! ๐Ÿ’โœจ๐ŸŒบ๐Ÿ’ซ

D๐Ÿƒ๐Ÿฝโ€โ™€๏ธ

Spotty-ewe profile image
Spotty-ewe in reply to DRunnerchick

Still wearing a fleece here - cool breeze but nice in the sun when it shines complete with shady hat of course.๐Ÿ˜„ Thereโ€™s no happy medium it seems, scorching heatwave your end and cool often wet days this end. I hope you donโ€™t get fires as you say. ๐Ÿ™๐Ÿป Youโ€™ll need to borrow the pooch in the photo to keep things dampened down. ๐Ÿ˜† Take care D. ๐Ÿค—xx

stiff19 profile image
stiff19

Bundles of love โค๏ธ Hugs ๐Ÿค— and support ๐Ÿค for two lovely ladies stormy and hw. XxLove the pic spotty bundles to you too hope you are feeling better ๐Ÿ™๐Ÿ˜˜๐Ÿค—xx

Spotty-ewe profile image
Spotty-ewe in reply to stiff19

Stormy sent a very short message to me today to say she will look at the post today so will no doubt draw much strength from all the lovely messages here for her and of course HW has seen them too. ๐Ÿ‘๐Ÿป Stormy is still struggling with what the specialist is telling her as much as with her symptoms. Poor Stormy. Iโ€™m not bad thanks Stiff. The iron tonic has made a big difference to my energy level! ๐Ÿ’ช I hope you are doing a bit better yourself. ๐Ÿ™๐Ÿป Take care. ๐Ÿค—๐Ÿ˜˜xx

You may also like...

All those who have been in a flare recently, how are you doing?

my kitchen. She was amazing. She brought me a head of broccoli too, but only because she knew what I

News from the Stormy Sunshine

what her problem is as far as she understands and conveying her love for everybody on this forum....

News of our Stormy Sunshine

Stormy has asked me to pass on all her love to everybody here. She had an operation on Wednesday...

Good wishes for our Stormy Sunshine

tell everybody here that she sends her love, peace and blessings to you all and is thinking of you...

Hi all need some prayers

everything up please pray for me that I can make it through I am so grateful for this forum for...