Have Covid 19 with Lupus and Antiphospholipid Ant... - LUPUS UK


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Have Covid 19 with Lupus and Antiphospholipid Antibodies

Pumpkin2009 profile image
14 Replies

Hi! I got Covid 19 in the beginning of November and have never been so sick. It seems there are so many unknowns with this virus. I did not go out, but my husband did and brought it home. He had the 15 day version and is better. My compromised immune system has not been able to fight as well.

I live in the USA. I have lupus as well as other problems.

It is 6 weeks later and I am somewhat better, but still struggling including no taste, low grade fevers, sores in mouth and throat, choking drainage in throat, no stamin, etc.

I discovered by accident that the antibodies for antiphospholipid are also show up in Covid 19. I am wondering if since I already had the antibodies that are also in Covid 19, it could put us at more risk.

Antibodies IG G and IG M that are for antiphospholipid show up in Covid 19 and have caused clotting problems. I am bringing this up because like others, I have tested positive for antiphospholipid antibodies for 20+ years and because I have never had a blood clot, the doctors do not think it is worrisome. (I am on blood thinner now for A-Fib.)

Please take care. It is no fun and other than over the counter things for the nausea, diarrhea, etc. there is no help and you can't even go to the doctors.

Thanks to everyone for such great support. This is my first time posting.

Healing hugs.

14 Replies
Spanielmadlady profile image

Hi.im sorry to hear you have caught covid.i hope you recover from it without it leaving you with anything else to cope with 🤞. I also hope you dont wait too long for a suitable vaccine .look after yourself and rest up ....let someone else cook Christmas dinner.sending you hugs full of warm wishes from across the pond xx

P s.welcome ......you will find a lovely very supportive group of people here so do join in ...shout out if you need to xx

Pumpkin2009 profile image
Pumpkin2009 in reply to Spanielmadlady

Thank you for the encouragement. On Thanksgiving, my husband brought in dinner as it is really hard to cook and not know how it tastes. I eat things by texture now. I really wonder how it will be after so long getting taste back.


Jmiller623 profile image

Hi Pumpkin. Thank you so much for sharing this. I have not gotten COVID yet. I, like you, have SLE and am aPL positive without a history of any blood clots. I also live in the states - Pennsylvania to be exact.

I have/had the same worries as you with regard to the virus. You are 100% correct that people have been coming back aPL positive with this virus. They are also clotting in the tiniest of their arteries and veins so the clinical picture matches an APS like phenomenon.

I worry too about the vaccine since the mRNA codes for a spike protein which is exactly what sets post-infectious APS off. I’ve always done poorly with viral vaccines and maybe it’s because of this. Maybe not. But I’m weighing my options right now since we have to wait to get the vaccine anyways. Your story makes me more likely to get it at this point. I’d imagine it can’t possibly be any worse than getting the actual virus.

I wish you a swift recovery in the coming weeks. Again, thank you for sharing. Sending socially distanced hugs your way. ❤️xx

stiff19 profile image

Sorry to hear your story but sending best wishes 🕊 take care 🙏x

Meg52 profile image

I'm sorry you've been poorly with covid. My sister has lupus , APS, and ILD, she caught covid very early on and has since had the antibody test which showed covid. She still has chest pain and has been sent a link for one of the long covid clinics. I hope you make a complete recovery very soon. You have enough to cope with without covid.

Gentle hugs Meg 😊xx

Pumpkin2009 profile image
Pumpkin2009 in reply to Meg52

Meg, I hope your sister is doing better. No one seems to know what this virus is capable after you have had it. Thank you for reaching out to me.

Healing hugs.

CecilyParsley profile image

Hi Pumpkin, bless you, I am so very sorry that you feel so rough. Can I ask did you get a positive Covid test? The reason I ask is that I got sick in September. Initially I had a high fever 101.8 and diarrheoa. I felt completely exhausted and shaky, my BP went up and I had a headache. I thought it was just a stomach bug. It just would not go. My GP sent off stool samples which showed no infection or blood. My gut problems seem to go then return with a vengeance. Next the post nasal drip, which has not gone. I gurgle with gunk in my throat despite nasal drops and antihistamines. For the past two and a half months my asthma has returned and I am now on 80 mg prednisalone, three inhalers and nebulisers. I do feel rough. Like you I was diagnosed with APS antibodies 11 years ago and put on aspirin. I had a Covid test but it was negative. I am unsure whether I have Long Covid or whether all these symptoms are coincidental. I really hope that you start to feel much better soon. Be kind to yourself and get plenty of rest. I wish you and your family a very Happy Christmas 🎄🎁🎉🍾🥂

Pumpkin2009 profile image
Pumpkin2009 in reply to CecilyParsley

Cecily, Your symptoms really sound like Covid and I am wondering if your test was accurate. I did not get the test as I was too sick to get anywhere and my husband had it first. He got it from his cousins who tested positive so it seemed quite certain. He was sick for the 15 days and did not get the multiple systemic symptoms I got. Our compromised immune system is totally challenged by this virus. My family doctors said it could be months to recover. It is defininetly a day-by-day at this point. Take care of yourself also and have a Happy Christmas and all the best in the New Year.

CecilyParsley profile image
CecilyParsley in reply to Pumpkin2009

Thank you so much Pumkin. My only reservation is that my husband has not got sick at all but maybe his immune system is strong. I think thee is so much we do nkt know about this virus. You look after yourself lovely xx

Meg52 profile image
Meg52 in reply to CecilyParsley

I replied to Pumpkin2009 but failed to say my daughter who has CREST has also had covid. She is a teacher and was feeling poorly, it was in the school, so she tested and was positive. Her husband and son tested and were negative, so don't let the fact that your husband didn't get poorly deter you from getting help if you need it. xx

CecilyParsley profile image
CecilyParsley in reply to Meg52

Wow that is very interesting Meg thank you so much. When I next speak to my GP I will mention it. I really hope your daughter is feeling better? It must be such a worry for you? Big Cwtches xxx

kingsnorth profile image

I hope you continue to make speedy recovery. Sending hugs x

Pumpkin2009 profile image
Pumpkin2009 in reply to kingsnorth

Thank you so much. Healing hugs.

DRunnerchick profile image


I’m so sorry you have been on such a rough road. Buggar! My thoughts and prayers are with you! That is just the worse thing, trying to get through all the things this time of year throws at you with all your normal hindrances, but this is above and beyond. We are all here for you if you need to rant or ask questions or cry or scream or even express some gratitude because something worked or you had a good day. All of it. Day in, day out. Okay 👌🏼?😘💖


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