Sorry to post random questions, but I would be interested to hear opinions from those who know more about it than me!
I had some blood tests done back in early 2020 as I had lost a lot of weight and my FBC kept coming back with low white cells and low haemoglobin. They tested ANA which came back positive, and then the ENA, some of which were also positive. At the time I was feeling extremely tired and I kept getting swollen and aching knees and wrists without any clear reason.
On the basis of the bloods, I was referred to a Rheumatology lupus clinic and should have had the appointment in May, but it was cancelled because of Covid-19.
I'm now back at work (teacher) and after only a week, I was completely wiped out. Yesterday evening I just fell into bed and slept and had to call off work today because I was hurting all over and feeling dizzy, etc.... I know it sounds overdramatic, but I felt like I'd run a marathon and not slept for a week!
I called the GP and luckily got a telephone appointment. They were looking into it and it seems like my referral has "vanished" after the cancellation, so they re-referred me.
Does this sound like I should be needing the Rheumatology appointment? I don't want to make a fuss about nothing but honestly.... I can't carry on like this! I don't know how I'm going to get through it at work and I don't have a basis to take time off because there is "nothing wrong with me" on paper at the moment. I've lost so much weight that my BMI is 14 or something ridiculous and even though I've taken the iron tablets exactly as directed, I can't get my blood counts up at all.
Who knows how long it will be until the appointment and I'm worried that even then, I might be chasing a dead end. It could just be stress - I don't know!
Thank you for reading.