Thanks so much to those who welcomed me here just over a week ago, I have taken all advice and info onboard and have managed to get a private referral appointment this weekend. I’m preparing all my symptoms notes. However, like most places during Covid they don’t want you to go in if you have any Covid symptoms like a temperature. What should I do? I’ve had a low grade fever for about a week and it’s one of the things that convinced the drs to do the ana test. Should I say nothing so I don’t lose my appointment? Maybe I should go for a Covid test tomorrow in advance? Anyone else suffer from temperatures but don’t know what causes it?
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SWinNorfolk
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Lots of people with autoimmune disease run low grade fevers. What is your temp? Best to call them and ask - because here you don't get in the hospital if you have a raised temp.
So it’s above 38, my urine test cake back normal, I thought that might have been the issue. Thank you, I think I’ll call and check, if I can get through to them, ha!
Ring and check then if they advise testing hopefully you've got time.as Pmrpro says low grade fever without cause isnt uncommon in AI mine used to run at about 37.4 for no apparent reason
So it’s above 38, my urine test cake back normal, I thought that might have been the issue. Thank you, I think I’ll call and check, if I can get through to them, ha!
That’s interesting, I’ve had this, 37.2-37.4 and I’ve been recently suffering low intermittently 34.9-35.4. I was prompted to check a few times as felt suddenly burning hot , giddy and nauseous . It does go back up 🤷♀️ I am writing it in diary to ask about .x
There have been a few times I've expected a roaring temp as I've been hot clammy etc but no always low grade.its a mystery and just something that happens in AI illnesses 🤒🤷♀️ xx
my temp stayed at over 38 all day yesterday but down to 37.4 today. Going for a Covid test today so hoping I can still attend my referral on Sat, fingers crossed if I prove I don’t have Covid (hopefully) and that I can keep my temp down.
Seems like the fever is something I’m going to have to adjust to happening randomly. stiff19 im keeping a diary too, will let you all know what the rheumatologist says on Sat about fevers.
If your test is negative I dont see why you cant attend your appointment.i dont seem to get them as much now I'm stable but if its low grade I just tend to leave it as it can come and go from 1 minute to the next.ill be thinking of you so keep us in the loop xx
Thank you all for the help in the lead up to my appointment. My temp stayed high, I managed to get my negative Covid test result in time for the appointment and took paracetamol and ibuprofen before just in case. Thanks to all the advice from people you all on here I went in feeling already supported and prepared. Short version is I got my Lupus diagnosis and err emollient up with lots more blood test, MRI and chest X-ray, was good to feel heard.
Now I’m going to continue reading and learning how to look after myself properly.
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Now I’ve done it, rheum appointment tonight!
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