Crumbling teeth?: Hi everyone, not sure if it is my... - LUPUS UK

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Crumbling teeth?

CecilyParsley profile image
78 Replies

Hi everyone, not sure if it is my age, having reached the old fart stage at 58 but two of my teeth have just crumbled and broken off? My dentist will not see me unless I am in pain which I am not currently as the fillings are hanging in there. I feel quite horrified by this. Does anyone else have this issue?

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CecilyParsley profile image
CecilyParsley
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78 Replies
CecilyParsley profile image
CecilyParsley

Thank you, I am just horrified by this . For it to happen once is bad enough but my back tooth has just crumbled. There are bits of tooth in the gum holding the filling. I was actually eating an ice cream and thought it had crunchy bits it literally went in tiny pieces like grit. My gums bleed but I have no gum disease. My dentist always says my teeth are pristine and that the bleeding is inflammation caused by the morphine.

stiff19 profile image
stiff19 in reply to CecilyParsley

Sorry to hear this but Glad they’re not hurting 👍 🙏

I’ve suffered bleeding gums, one day just sitting in car on journey and started, dentist also said I had no gum disease, but happens now and then 🤷‍♀️

Hope it stops at two 🙏

🤗🐝

CecilyParsley profile image
CecilyParsley in reply to stiff19

God me too. I have a fetching three inch white parting and now my teeth. I won’t dare go out at this rate lol 🤓

stiff19 profile image
stiff19 in reply to CecilyParsley

Bless you cecily 🙌🏻 I don’t look fetching myself with dropped side of face , one eyebrow and eye a good half inch lower than the other and droopy side of mouth add to that intermittent swelling , a horrible lesion and a squint with blurred eyes 😂😂 We should do a calendar 🙈😂😂

Joking aside I wish you well and hope you find some answers 🙏👍

CecilyParsley profile image
CecilyParsley in reply to stiff19

That made me laugh out loud. Omg what a calendar it would be. What would we call it? The young people at the leisure centre used to refer to the attendees of the gentle exercise class as the crisps and old farts group. Very apt lol Thank you so much for the giggle. Laughter is the best medicine isn’t it? Xx

stiff19 profile image
stiff19 in reply to CecilyParsley

Sure is cecily 👍 🙌🏻🤗🐝

Olderkitten profile image
Olderkitten in reply to stiff19

You have a droopy face? Is it bells palsy? I have that and it's been 42 years, when it first happened left side of face was paralyzed and then was off kilter and now droopy, can't smile and when I see a picture of myself I look demented.

stiff19 profile image
stiff19 in reply to Olderkitten

No I was told not bells my mouth is not so much the problem droop wise just slight drop and comes and goes, my tongue deviates to the right my eye is permanent but swells badly too . I’m waiting still to get help . my face that side goes numb and they said it looks like muscles contract and get stuck but I really don’t know 🤷‍♀️ It’s very painful now and wasn’t before but it’s been over a year and still waiting 🤷‍♀️ Covid hasn’t helped With getting help but I feel it’s linked to other symptoms.

Bless you sorry you have that, I fear we are bothered more by how we look than others are, but if our hearts are beating and air in our lungs , the way we look not so bad ay 👍🙌🏻 How I feel bothers me more 😡 And who we are is more important than what we look like. Ok, I have to tell my self this yes at times I’m gutted the way I look but today I guess is a good day.

Look at your pics and look past it 🙏

Best wishes to you 👍🙏🐝

PMRpro profile image
PMRpro

What medication have you been on?

CecilyParsley profile image
CecilyParsley in reply to PMRpro

I was on Hydroxychloroquine for over ten years until I had the problem with my eyes following the Rheumy prescribing a double dose. Other than that B12, aspirin, Amlodopine, Morphine, Garbapentin, Fultium D3, Citalopram, Antihistamine, Bricabyl inhaler,Omeprazole,Levothyroxine.

PMRpro profile image
PMRpro in reply to CecilyParsley

Did you suffer dry mouth with any of them? That can lead to damage to teeth. I wondered if you had been on pred - I have no tooth problems but I know quite a few who suddenly developed crumbling teeth!

CecilyParsley profile image
CecilyParsley in reply to PMRpro

My mouth is always dry like my eyes, skin, hair. I drink four litres of water every day and use the saliva substitute chewy tablets. I was on prednisolone three times last year but for two weeks at a time reducing from 20 mg

PMRpro profile image
PMRpro in reply to CecilyParsley

That amount of pred is unlikely to be the cause (I've been on it for 11 years!) but I would be surprised if the dry mouth problem hadn't contributed.

CecilyParsley profile image
CecilyParsley in reply to PMRpro

I agree. When I was first diagnosed with chronic asthma in 1990 I was put on 70 mg of prednisolone. They do not use those high doses now but in those days I would regularly be put on that dose and only reducing by 5 mg a week

Kevin53 profile image
Kevin53

A couple of my back teeth crumbled at 58. I was in deepest Africa at the time! My dentist tidied up the bits on return to the UK and have been fine since. The dentist thought that I might have been grinding them in my sleep! Best wishes Kevin

CecilyParsley profile image
CecilyParsley in reply to Kevin53

Really? Wow what a place for it to happen Kevin. Good to know I am not alone. I am worried I might need a surgical removal Because it has crumbled right near the gum line. I have noticed I am clenching my jaw more than usual because I am using the treadmill and my knees do not like it .

Kevin53 profile image
Kevin53 in reply to CecilyParsley

Mine are close to the gum. The dentist monitors them. He says as long as the gum is good and the roots don’t cause me problems he will leave them alone. No issues for 9 years. Best wishes Kevin

CecilyParsley profile image
CecilyParsley in reply to Kevin53

I have a massive mercury filling just stuck to the tooth and food is getting stuck in it so I hope they can just take it out. The filling has been there about forty plus years . I hope that mine is as easily remedied as yours Kevin thank you.

happytulip profile image
happytulip

Long-term steroids??

CecilyParsley profile image
CecilyParsley in reply to happytulip

I had three courses last year but only for a week at a time

LalSD profile image
LalSD

Hello CecilyParsley, my sister had the same problem and she has Hasimoto. My father has the same problem and he has diabetes. My family has lupus but we dont have crumbling teeth problem but we have gum disease problems and mouth sores etc. I wonder if acid reflux can be the problem (acid can cause massive burn) or if you had tooth decay overtime which weakened enamel of your teeth? Are your blood results up to date? Has there been any indication on change in hormone levels, I would look in to that as well as the dentist. A strange one.... Hope you find an answer. With best, Lx

CecilyParsley profile image
CecilyParsley

Thank you so much. I do get acid reflux and I have just been put on oestrogen pessaries although I went through early menopause at 40. No I have not had bloods done this year. I am not a priority since the Rheumatologist said I did not have Lupus but UCTD. I am afraid I am very much left to my own devices. Xx

jennifer15 profile image
jennifer15 in reply to CecilyParsley

Hi, my teeth are terrible since taking steroids for GCA. They are more stained, crumbling etc. The rheumatologist said that it is caused by large amount of steroids. I feel hideous and hate opening my mouth! Even my four year old grandson remarked that my teeth looked as though they needed cleaning! Nothing I can do other than having crowns to every tooth and do not feel up to that and could not afford it!

CecilyParsley profile image
CecilyParsley in reply to jennifer15

Oh I am so very sorry Jennifer. I know when I was on steroids for two years on and off in large doses I spent so much time at the dentist. Then when I first became ill I fell and smashed my two front teeth out. Fortunately they were able to screw in crowns. Dental work is so costly which is why I am praying that they can actually pull these bits of tooth out without having to cut the gums as they did once before. £200 is such a lot of money when you are on benefits. X

KellyInTexas profile image
KellyInTexas

I know I have mentioned to you before, but I have a feeling you should keep a watchful eye on sticky blood.

If you even have a mild propensity for it, it can just get a little sludgy, and the tiny capillaries can not flow well. You may not experience a full , “ traditional” clot.

Lots of APS patients have terrible dental issues for this very reason. ( early root canals, etc. then root canals, etc.) poor blood supply is the culprit.

CecilyParsley profile image
CecilyParsley in reply to KellyInTexas

I did not know that Kelly thank you so much. I will definitely mention it to my dentist xx

DJK99 profile image
DJK99

Sorry to hear this CP! Up until 21 I had dreadful trouble with my teeth - an ex said I looked like Metal Mickey when opened my mouth! Charmed! Then my dentist recommended I use dental floss - and much better since. I also had a crumbling tooth at that age and I would not recommend leaving it for many months (as I did as couldn’t afford the dentist), as the roots got tougher to stabilise it, as was rocking - and was more difficult to get out in the end. Anyway.. you mention going on oestrogen pessaries.. I was until last year, but had to come off them, and just use Regelle now.. but I wondered if your reason for using is quite bad atrophy/dryness there? Which I have. To the point of bleeding if “used” etc ;). Impossible. I also have “probable” Sjogrens (my rheumy has said) as very dry eyes (using Carbomer at night and Hylo Forte all day) and very dry mouth, plus life long extremely dry skin and constipation etc. Do you have these symptoms too? I drink water all day and all that. Just wondering also if you take high Vit D as deficiency causes tooth decay. I’m on 2000 iu’s as prescribed. Ring any bells?

CecilyParsley profile image
CecilyParsley in reply to DJK99

Bells ringing very loudly. Yes to all really. Very coarse dry hair, very dry skin, I literally cream myself from chin to feet twice daily, dry eyes I use Hyloforte about six times a day. I have had repeated UTI’s and had eleven courses of MACROBID . The burning has become intense now to the point I could not use my Replens without severe irritation. I am only on my second week of the pessaries. I take Fultium D twice daily for Vitamin D deficiency too. I am hoping that the filling stays in until next week as if I have to have the damned thing surgically removed as I have had previously they charge £200 😱xx

CecilyParsley profile image
CecilyParsley

No none. I was due to have a new crown in March which of course got cancelled. I haven’t had so much as a filling for over twenty years and I get a check up every six months xx

ShannonB profile image
ShannonB

I don’t know anything except anecdotal comments here a few years ago but my baby teeth all broke into pieces when I was a child and they blamed it on antibiotics. I was diagnosed at age 12 in 1982. There was someone else who posted here a few years ago about crumbling teeth and a whole bunch of people with lupus including me chimed in to say it has happened to us.

CecilyParsley profile image
CecilyParsley in reply to ShannonB

I had that too Shannon. The very same explanation as yours antibiotics which seemed plausible as it was horrible thick sugary medicine.It always amazes me how we have similar experiences xx

HRH8591 profile image
HRH8591

Just wondered whether you have had a Bone Profile done and depending on results i.e. if calcium is high, a PTH test - Parathyroid Hormone? I have Primary Hyperparathyroidism, hopefully cured as had operation last year to remove the overactive gland called an adenoma. Teeth are a fairly common problem with this disease.

CecilyParsley profile image
CecilyParsley in reply to HRH8591

Funny you should say that on my last blood test in December my Calcium levels were high. My GP redid them two weeks later and I have been unable to get the results. It was as if all my bloods were off the lab report had bold type reporting too high, too low on many areas. A Rheumatologist I saw in England told me after my results from St Thomas’s showed only a trace of vitamin D that I almost certainly had Hyperparathyroidism issues but my new Rheumy refused to test saying he preferred to deal with what I did have rather than what I might have. Once the surgery starts testing bloods again I am going to request a full blood screen. I hope that you are feeling better now? Xx

HRH8591 profile image
HRH8591 in reply to CecilyParsley

Well I'd strongly suggest you join a group specific to the disease I'm in both groups but would recommend FB one Hyperparathyroid Action 4 Change. There is a website too. I found this group much more knowledgeable and helpful in cutting through the crap many of us get faced with. If your calcium is elevated they need to do a pth test for you. I'm sure with Lupus you are used to NICE Guidelines and the trials and tribulations of getting a diagnosis. My rheumatologist also dismissed the possibility in 2011 and I've lost a fair bit of bone density as a consequence. Talk to your dentist about it too they usually know of the associations and ask him to write to your GP about your teeth and concerns.nice.org.uk/guidance/ng132

HRH8591 profile image
HRH8591 in reply to CecilyParsley

And yes, better than I was in spades. Still on the case though as they have been for some time as to whether I have Lupus or not. So difficult to get these people to talk to you as though you are intelligent life.

CecilyParsley profile image
CecilyParsley in reply to HRH8591

Yes very difficult to cut through the often patronising, condescending, dismissive Rheumy’s I have met. It does not help that I am often defensive, emotional and desperate despite my going prepared. I have had my diagnosis of Lupus given twice, removed three times over the past eleven years. The fight is real xx

HRH8591 profile image
HRH8591 in reply to CecilyParsley

Very sorry to hear that. I know how difficult it is. For me, at least I finally had my GP on side once he realised I was not an hysterical mad woman but one that was genuinely ill with a variety of complex things going on. None of them talk enough to patients and explain their approach/decisions which leaves you feeling your health isn;t the determining motivation. I'm sorry to say Endocrinologist's are no better at all. If you find you need to see one get a recommendation. Where are you? PS I have just developed TMJ too.

CecilyParsley profile image
CecilyParsley in reply to HRH8591

I am in South Wales. I have to say I have had very good service and interaction with Urologists, Gastrologists, ENT doctors, Maxo Facial Doctors, Orthapaedic Surgeons, Cardiologists, Opthamologist, physiotherapists etc it is only Rheumatologists that seem to dismiss, condescend and patronise me. I have not seen an Endocrinologist for thirty years and have to say that was not very positive either. My GP was fabulous until I decided to self inject for my Pernicious Anaemia. Since then she has been extremely distant which is a shame as she used to ring me once a month to see how I was and monitor me monthly at the surgery. She recently re referred me to Urology and the only info she gave was that I am obese a vegetarian with uncontrolled Fibromyalgia?? Two out of three right I guess but I was very disappointed in her.

HRH8591 profile image
HRH8591 in reply to CecilyParsley

Needs must. I was fortunate that my haematologist took note of family history of Pernicious Anaemia and Pancreatic Cancer and instructed my GP for injections. Irrespective of personal feelings they should do the same and proper job for all. I know there is not the selection of good specialists in Wales as in England but many of us with go straight to surgeons with our bloods. I know Mr David Scott-Coombes is one of the biggest names in Wales (a surgeon), based in Cardiff so you may want to keep his details. I've undertaken work via requests for Freedom of Information on the amount of surgeries for the group and if you do need anyone you want someone that does 50+ surgeries per year. Sadly plenty of patronising medical "professionals" in Endocrinology with poor attitudes towards patients, especially females, too. If you decide to go, keep my details and I can always get feedback for you if needed.

CecilyParsley profile image
CecilyParsley in reply to HRH8591

Thank you so much. I have made a note of him. I suspect , if I do need surgery my GP will refer to a local surgeon but if I am given a choice then his resume is excellent.

HRH8591 profile image
HRH8591 in reply to CecilyParsley

The Guideline is that you need specialist experienced surgeon in parathyroidectomies so don't let them push you to local if you need surgery. It's an area that where people can end up having multiple surgeries through inexperience. Many travel for the best, not a straighforward surgery as they can be tricky blighters to identify and often don't show up on scans. Hope you don't have it but it sounds as though needs investigation. Best of luck all round.

CecilyParsley profile image
CecilyParsley in reply to HRH8591

Thank you so much. I really appreciate your advice

Kaboom1250 profile image
Kaboom1250

Oh, please accept my deepest empathy...I have had a long long history of crumbling teeth, broken veneers, etc....Most recently today and yesterday. 🥺 It is maddening, embarrassing at best.

Things that have been told to me by Drs that correlate (I had no idea): Sjogrens, Hypothyroidism, stress-grinding (guilty of all to start🙋‍♀️🤦‍♀️). It is awful, and I am so sorry you are suffering from this. Sending healing thoughts and love.

CecilyParsley profile image
CecilyParsley in reply to Kaboom1250

Thank you so much. As I type this yet another tooth has chipped off and the filling party crumbled so very sensitive. I have dry mouth but no diagnosis of Sjogrens but I do have Hyperthyroidism and currently on 120 mg Levothyroxine. I am so very sorry that you have it too. Love and big Welsh Cwtches to you xx

Hamptons profile image
Hamptons

Yes, this happens, one went in lockdown, on my third I think. It is an autoimmune thang- hooray. Dry mouth, also grinding which has a posh name which is autoimmune. There was a brilliant lady called Twitchytoes who could explain the medical part - may be worth looking at old threads relating to teeth.

It is horrible and freaked me out more as my recurring life nightmare is my teeth falling out and then it happened.

Makes sure your dentist knows you are autoimmune as there are gels, tooth pasted that can help.

CecilyParsley profile image
CecilyParsley in reply to Hamptons

Thank you so much xx

AgedCrone profile image
AgedCrone

Well CP.....if you think 58 is the OF stage...think again!

I’m 20 years older than you & I still have all my own teeth!

Ok...lots of fillings...but no cumbling yet,

Have you told your dentist you have an auto Immune Disease?

Look up the British Dental Journal...a few months ago there was

a very interesting article how dentists should treat people with

these diseases,..I meant to print it....but being almost an OF.....

I forgot!

Good luck...hope you get some help soon.

CecilyParsley profile image
CecilyParsley in reply to AgedCrone

Ha ha I am sure that you are not an Old Fart. I feel 100 most days. Yes my dentist knows about my condition and before the lockdown he had referred me for my TMJ issues. I will have a look at the Dental Journals thank you x

Tykle profile image
Tykle

Sorry to hear about your teeth C.P.. Mine have gone into decline since I came off hydroxychloroquine and my Sjogren's started to get worse. Dry mouth means the enamel doesn't have a defense and wears away, particularly if your gums receed, exposing the lower part of the tooth without the enamel protection. Does your dentist prescribe you a high flouride toothpaste?

CecilyParsley profile image
CecilyParsley in reply to Tykle

No he hasn’t prescribed that toothpaste but I will definitely ask thank you so much xx

_bunty_ profile image
_bunty_

Hello Cecily!

I’m so sorry this is happening to you. Sounds like a nightmare. I have bad receding gums and I have dreams about losing teeth. At the mo I’m in double dosage of hydroxy and my face is a mess! Although through the stress at the mo I’m munching way more sweet things than usual. So maybe my spots are the result of over eating! I would like to feature in this calendar myself!

I hope it won’t get worse. Watch something funny to cheer yourself up! Watch a frasier! We’re doing a jigsaw puzzle of the world map! That is a welcome challenge!

Stay positive and well love

Betsy xx

_bunty_ profile image
_bunty_ in reply to _bunty_

NB I have terrible dry eyes too and dry skin.... feeling your pain x

CecilyParsley profile image
CecilyParsley in reply to _bunty_

Thank you so much Bunty. Can I ask what dose of Hydroxychloroquine you are on? A Rheumy put me on 600 mg and I had to come off it as I developed fluid on my maculars. I loved Frasier. I just binge watched two seasons of Absentia and one of Condor xx

_bunty_ profile image
_bunty_ in reply to CecilyParsley

I’m taking 200mg twice a day (when I’m not having a flare it’s only once a day). I’m also taking myfenax 500mg twice a day. These are only for lupus - I take a myriad of pills twice a day! You must be in the same boat! I’ve got a boxset of frasier and whenever I’m down in the dumps it always cheers me up! Xx

CecilyParsley profile image
CecilyParsley in reply to _bunty_

I have been so much more unwell since I had to come off Hydroxychloroquine. Yes lots of pills. We bought the box set of Frasier too. Also The Gilmour Girls always makes me happy xxx

CecilyParsley profile image
CecilyParsley

Yes I am on Fultium D Lou twice a day 800IU xxx

Wendy39 profile image
Wendy39

Hello CP

Sorry to read this. A few things spring into my mind.

1) I'm sorry, but whoever says enamel and teeth last for life isn't right for everyone. Some people seem to have amazing teeth and never need a filing and others have terrible teeth, no matter how good they are looking after them. From my discussions with friends, I think there is an element of inheriting good strong teeth or bad. Why would anyone need implants or false teeth if they lasted everyone a life time? I've looked after mine well I think, but still have needed filings over the years.

2) Before I got my lupus diagnosis, I had a terrible spell at work and I was under a lot of stress, so much so that I ended up leaving. Anyway, I woke up one morning and my mouth was full of bits. I couldn't work it out immediately. It turns out one of my big back teeth had crumbled in the night. The dentist rescued it, which was a miracle. I think it was the closest you could get to needing the very remnants removed and losing it completely - to being able to save it. He placed a mental band around it and deep deep filled it. I can't believe that 10 years or so later, it's still in. But if the filling ever failed or fell out, it couldn't be repaired again. I have never had this happen before or since. When I saw my GP about my headaches and stressful time at work and explained about my tooth, we came to the conclusion that I was so stressed, that I was sleeping with my jaw clamped shut, grinding my teeth. and I had made this tooth crumble. The headaches were in a band of tension around my head. Tense muscles in head all night with stress. So I was prescribed a few weeks of muscle relaxants, to make me sleep with my mouth open, save any more teeth being damaged and to let the muscles in my head and jaw relax. It worked. The headache cleared.

3) Dryness - is very much autoimmune - skin, eyes, teeth, etc. Have you ever had the test on your eyes for Sjogrens? To see if you have dry eyes? This can be part and parcel of lupus or sjogren's or overlap with any other AI / CTD illness. I have sjogrens and I told me my dentist right away. He helps by being extra vigilant when doing my check ups. So far, it hasn't effected my teeth. But my understanding is that if you have less saliva in your mouth, your teeth aren't so well protected against acids from food and drinks. People with dry mouths should have a very good oral hygiene routine but also use saliva replacements. Chewing gum can help you produce more saliva - sugar free of course. I've also had some pastilles prescribed by my GP. Again sugar free. I know you can but them on Amazon. But sucking or chewing will help keep mouth moist. Little sips of water throughout the day. I tried to see if they were a LUPUS UK information leaflet on teeth but couldn't find one. But I know in my lupus books I have seen pictures of teeth effected by the dryness of sjogrens. Tooth decay is a very real issue for this condition. (Sjogrens is sometimes referred to as sicca syndrome).

Just a few things to think about.

I noticed that dentists still aren't open. Not sure if people have even been able to access emergency dental care during this pandemic. But I think you need to see a dentist when you can to assess the damage and discuss possible causes.

I hope this all makes sense and that the replies help you.

Best wishes

Wendy x

CecilyParsley profile image
CecilyParsley in reply to Wendy39

Thanks Wendy. I have had my eyes tested by the Opthamologist. He was very thorough. He said strangely my eyes have very dry patches and prescribed Hyloforte. My surgery stopped them ( budget cuts) but when I saw my GP and told her that the new drops were useless she put me back on them. My lovely dentist who referred me for TJD and mouth ulceration left and the new dentist sadly was nowhere near as thorough. I have been told that he too has left now so I hope the new one will be better. I am aware that as I have been using the treadmill I have been gritting my teeth with pain so this might well have contributed. I do drink water all day. About four litres as I had to do a bladder diary with input and output.I have contacted my dentist but they will not see me unless it is an emergency and I am in pain. If this filling drops out I will be so fingers crossed 🤞🏻Xx

Wendy39 profile image
Wendy39 in reply to CecilyParsley

Bless you! There's always something isn't there. I hope it doesn't become too painful for you.

You sound like me, when I did my 3 days input / output for urology - which they never actually looked at anyway - I drink between 3 and 4 litres a day. I am always thirsty! My mouth and throat always feel dry. I love my tea and coffee - decaf of course - but my favourite mug is huge! 400ml!

Keep us posted.

x

CecilyParsley profile image
CecilyParsley in reply to Wendy39

Ha ha I can beat you Wendy my favourite mug is 700 ml. I restrict myself to two a day .Not decaf ( shhhh 🤫) Choking is a real issue for me. Yesterday I picked up a tiny new potato that I had cooked for my hubby, but it and choked. Now I have nasty purple bruises on my back where he hit me to get it out. But I should think positive and get on with my life because my condition is only mild right?.... sorry turning into a twisted bitch before my very eyes lol xx

Wendy39 profile image
Wendy39 in reply to CecilyParsley

700mls! I want one! How have you got the strength to lift it? That's a workout right there! I have 2 normal coffees in the morning, as I am like a zoombie when I get up, especially with an alarm. Left to my own devices I wake between 9 and 10am, so 7am alarm during term time is terrible. Then decaf tea and coffee from then on. Goodness, if I had a £1 for every time someone said your disease is mild, you're fine.....I liked that this too was covered by Melanie Sloane's paper - it said that even for those with organ involvement, fatigue and aches etc are all much more debilitating than the organ involvement. I am putting in my letter to NHS Rheumy that they might considered my symptoms mild but it effects my life every day. The contrast between my heathly friends life style and mine are vast - I am not a normal 45 year old living a normal life!!!! Please do not choke on any potatoes anytime soon. x

CecilyParsley profile image
CecilyParsley in reply to Wendy39

Emma Bridgwater..they have a sale on now. I think it is a cocoa mug. Hubby bought it for me it has hearts and my name on. I love it. Thank you for always making me smile Wendy. I appreciate it so much xx

Wendy39 profile image
Wendy39

CP

Found it!

lupusuk.org.uk/medical/gp-g...

Wendy x

CecilyParsley profile image
CecilyParsley in reply to Wendy39

Thank you for this. I saw a Professor at Cardiff for my dry mouth and ulceration about neighs years ago. He said I should use fluoride based mouthwash, chew sugarless gum, and he prescribed soluble prednisolone pressed on the ulcers. He advised that as I was under St Thomas’s at the time it would be better for them to undertake a lip biopsy. I told them when I went for my follow up but sadly they discharged me saying local Rheumatology could deal with my issues .That never happened primarily because I had no faith in any of them and refused to see them for two years until I got very sick . My chewable saliva sweets got binned in budget cuts because I have no diagnosis xx

Wendy39 profile image
Wendy39 in reply to CecilyParsley

What a mess. So sad that you have been let down so badly, by so many.

Many of these saliva products can be bought online. Mine were a little cardboard dispenser with red small pastilles. I can't remember the brand.

I use an electric toothbrush and fluoride toothpaste. But I know my dental surgery sells medical grade products if you need them. I have no idea how much they are though.

x

CecilyParsley profile image
CecilyParsley in reply to Wendy39

Yes the ones I used to take were little red chewy ones. As I am home now I have a bottle of water which I sip constantly which helps. Xx

Lupusrelative profile image
Lupusrelative

Could be steroid use. Affects the bones too 😢

CecilyParsley profile image
CecilyParsley in reply to Lupusrelative

I haven’t been on high doses. When I was for my asthma I had to take meds to strengthen the bones and have annual bone density scans.

Olderkitten profile image
Olderkitten

Hi Cecily, I don't know why your teeth are crumbling but you should have said you were in pain and get x-rays to see if you have any underlying problems. I'm sorry your going through this.

CecilyParsley profile image
CecilyParsley in reply to Olderkitten

Hi there, yes hindsight is a wonderful thing. This afternoon I have had another tooth crumble and a partial filling drop out so I will have to be seen next week. Thank you xx

Roanna profile image
Roanna

Cecile, sorry that Dentist are only seeing emerg patient’s right now. I do have a dental back ground and along with the dry mouth, clenching and one old fillings , my guess is one more to add to list. Old amalgam filling expand over time causing teeth to break and crumble. You could be eating soft foods and it just is time. When one goes the bite changes and extrudes so more pressure is placed on teeth in the area. So it’s a chain reaction if not fixed. Being that your feeling something, the tooth may still be alive. If it’s broken below the gums, depending on many factors I won’t get into, it may be best to pull it. With sensitivity, watch what you do on that side and usually the dentin under the enamel recedes making it not as sensitive. It may keep breaking to where you need to get it repaired or removed sooner than later. Note if your pain gets bad enough, wink, wink, they will book you sooner. Isolation during COVID is a big issue now so good luck. I have seen adults in same families with someone not looking after there mouth having no cavities, and the other sibling doing everything possible having cavities more often. All you can do is try your hardest to maintain them.

All the best to you. 🤗🤗

CecilyParsley profile image
CecilyParsley in reply to Roanna

Thank you so much Roanna, that makes a lot of sense xx

MichelleHarris profile image
MichelleHarris

My heart goes out to you!

I went to my NZ dentist with a mouth full of mercury fillings and continual toothache and very uneven teeth which greatly affected my confidence all my adult life up to that point, after emigrating to work. - A mouth full of fillings because British dentists FARMED my teeth and a whole load of other people of my generation.

I had gone to the UK Dentist faithfully every 6 months 😞

I was told by my NZ friends that if they find out its a British dentist moved to the area, they are avoided.

They laugh that our fillings are pushed in so quickly you can almost see the dentists thumb print impression.

They criticise mercury amalgams as they constantly heat up, then cool which causes minute cracks in the tooth, which results in the ultimate shattering and crumbling of the tooth.

My NZ dentist took all mine out!

He explained that my teeth wernt straightened because it was a little harder with mine and the UK dentists lacked the technical ability, lazy or lacked empathy.

The layers and layers of new fillings were completely pain free. A had a mouth guard to stop any fragments being swallowed.

I have never had any pain or any need to see a Dentist in the decade since and people remark on how lovely my teeth are.

Your misery is caused by the cruelty of British dentists x

CecilyParsley profile image
CecilyParsley

Wow, that is really scary to hear. I am so pleased for you that you have now got a dentist you trust and are pain free. I had a wonderful dentist when I first worked. He was private through Denplan and drove a Porsche and was so incredibly handsome. I live in an area of great depravation in the South Wales Valleys and our dental practice has changed hands every year. No continuity or consistency sadly xx

MichelleHarris profile image
MichelleHarris in reply to CecilyParsley

Yes its a lottery even more so in Wales. My partner is Welsh. I’m home from NZ now but if I have any trouble I will want to fly back to NZ. I do not trust UK Dentists now after they butchered my teeth. They only have there profession to blame. I hope you can get it repaired. I really feel for you. Best of luck for a good outcome x

CecilyParsley profile image
CecilyParsley in reply to MichelleHarris

I had a fabulous dentist in West Wales when we lived there. I really hope the new dentist is decent. I have said to my hubby I would move to NZ if I could just for Jacinda Ardern .What a Prime Minister.xx

CecilyParsley profile image
CecilyParsley

Yes of course it is I typed Hypo but it changed it lol. I take 120 micro grams of Levothyroxine daily. Brain fog is nit my friend 😂

CecilyParsley profile image
CecilyParsley

Hi Sue, yes I took AA for several years on and off in my 20’s and 30’s as my asthma was brittle and I was on IV, oral and inhaled steroids for long periods of time. My dentist took x rays of my teeth last year and always felt my jaw. I have had trouble with TMJ D and TN in the past two years and so he has referred me back to the dental hospital. When I get to see the dentist I will ask for an update. Thanks for the info. I had a heel bone density scan a few years ago and was fine but I have not taken steroids more than a two week course three times last year.

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