Happy Funday Sunday y’all!
I see my rheumatologist this Wednesday. She usually scoots around my GI issues and defers to my GI doc when it comes to my esophagus. The bottom portion of my food tube doesn’t really move confirmed by manometry/imaging. I go for repeat esophagram tomorrow to assess dysmotility. Steroids helped tremendously with this. Now off, I’m back to feeling like food is forever stuck in esophagus. I can smell what I ate 4-5 hrs before because it just sits there. Always bloated.
My GI doc just started me on super low dose Buspar/buspirone 5 mg before meals. It seems to work a little but nothing profound. Keeps the mucus amount down. Doc said no pyridostigmine or bethanachol because my heart rate has rapid swings and I have reactive airway disease.
Has anyone tried anything else for SFN/esophageal dysmotility? My team suspects my GI issues stem from small fiber neuropathy as I have peripheral neuropathy along with dysautonomia and maybe POTS. I’d just like to go to my rheumatologist fully informed and ready to discuss options beyond just Plaquenil if necessary. I’ve tried Imuran and CellCept. They were no bueno for me. I keep my bed on a 6 inch wedge/incline. I keep away from foods that cause reflux.
Thanks in advance for any advice you can offer. Of all the things that came along with lupus, this one bothers me the most/effects my quality of life.