Sometimes in the night especially when its damp or raining I wake up but cannot move at all. I have to wake my partner to help roll me over cos I just cannot as it's so painful despite taking zomorph twice daily 30mgs. I'm 40yrs old btw with 2 small children.
I have recently woken in the morning unable to move and had to be lifted by him out of bed as cannot move at all.
I am on mycophenolate 4 tabs a day. I already take 20+ tablets everyday for the various issues of my sle and aps.
Even as soon as he moved me in the early hrs this morning I got rolled over and literally stiffened up again straight away??! I have already increased my steroids to 20mgs daily as I do for a flare which I absolutely hate doing!
I just wondered is this something anyone else suffers with, as I lay there 2 hrs some nights in pain as I dont want to wake my partner or if my 3 yr old has got in the bed in the night I dont want to wake her by calling him/waking him to move or lift me.
What can I do??! Why is this happening!