I was wondering dose anyone else get pressure in the face Ie teeth jaw nose neck it’s like it’s all joined that and my swallow plays up my eyes become well heavy slow vision .. as you all know I’m terrible at explaining things but this seems to happen a lot but it dose completely disappear after anything from 4-5 days to a few weeks I wouldn’t say it’s painful more hard work 😓
Sorry if this makes no sense xxx
What happens when you swallow?
Just feels as if something is in my throat pushing against it xx
Yes I think you have described something I experience a lot. But I’ve given up trying to get my doctors to account for this and now just blame my Sjögren’s.
In fact I’ve got it right now after an afternoon in our studio with artificial strip lights that buzz, working alongside my husband and an artist friend on a collaborative project.
She suddenly told me that I looked terribly pale, exhausted and rashy with painful eyes and mouth and rice crispy noises in my left ear whenever I gulp or swallow. For once I knew to put my eye drops in straight away, don my shades and tell them both that i need to get home ASAP and go straight to bed. It’s the lighting, sounds of buzzing and our voices. My face feeling as if it’s in a vice - all combining to form a sensory treacle. I started to go into meltdown with fatigue.
She has mental health issues and I have autoimmune diseases and there’s a lot of sensory overlap. I know this because I had to take her to hospital recently for extreme bipolar episode that led to her becoming suicidal and she explained to me how the world felt to her. This made me realise that I’m mentally very robust but physically I’m pathetic - the polar opposite to her in fact!
However I think it came as quite an insight for her to see the neuro symptoms I experience first hand today. Actually I have only worked out that lighting and sound affect me so much through reading posts here about neuro Lupus etc.
So perhaps the slow vision and facial pressure you describe are some form of neuro response to your environment, similarly to how my own environmental sometimes affects me?
Yes I have brain lesions so I know that something neuro is going on with me almost feels as if everything just drops with pressure is so strange I’m going to try weekly b12 injections see if this helps maybe you should try after all it looks after our nerves xx
Yes, as TT says, you may be describing a nerve-related issue. You describe things well! Always better to tell the doctor what you feel like in your own way. Things can be hard to pin down. I felt like I was choking - lost weight because of it - and it turned out to be acid going in my throat. So just tell the doctor and ask what is they can speculate.
I hope this gets better. Sounds like a miserable symptom.
Xk
B12 injections sound like a really good idea - I do hope they work. My neurologist has it checked recently and B12 is around the 750 mark so there is no way I’ll get B12 injections. Fingers crossed for you though.
This link I just found might be of interest. The throat crushing for me is oesophageal spasms and sipping tepid water slowly through a straw really helps relieve it for me.
theraspecs.com/blog/does-li...
You know my pet scan showed inflamed Oesophagus throughout maybe This is why thanks for that xxx
Sounds like a strong possibility. If you have pernicious anaemia or B12 deficiency then perhaps you have low stomach acid?
Sounds like a strong possibility. If you have pernicious anaemia or B12 deficiency then perhaps you have low stomach acid? I think this can cause same symptoms as acid reflux.
Yeah maybe il ask the next doctor I see xxx
Do you have a history of migraines? I have symptoms like you describe after a migraine headache for usually about 72 hours sometimes longer. Cluster and tension headache are differential diagnosis aswell as TMJ, TN and if more persistent will elevated ESR and jaw claudification after chewing gum for two minutes, GCA. Mine is always worse if my neck has been tight and tense for days.
Yes has been suggested to me I don’t really get headaches more face aches my my neck tenses up so much so I can hardly turn my head one way my jaw clicks like mad too has done for years xxx
When is your next neurology follow up? Make sure you mention the symptoms and ask what is « serious » and what isn’t. I have low level CNS involvement and it was so helpful to hear what symptoms necessitate the emergency room and what don’t. I know you must feel like it is only you. But it is not. Many of us have what I call « weird head » syndrome. Once you get sorted out diagnostically, they may be able to find medications to help. If it is neurological, they can help calm your brain down. I am a lot better on medication. With you, unfortunately, they probably need time more than anything to figure out exactly what is going on. Doctors know how scary neurological symptoms are. Just call the nurse in the neurologist’s office if you are concerned. Hey, the average person is worried when their cold may be bronchitis. You deal with a lot more than that!
Xk
Thanks kaykimm always there with helpful advice it’s much appreciated I think I’m constantly trying to relate things I just have to except that it may not be related they say your body changes every year so I’m going to try the more frequent b12 as I have pa anyway maybe try some antihistamine.
My mother in law said it sounds like migraines and my neurologist said it could cause the brain lesions that and the b12 pa.
I just find it helpful to ask others now mums not hear I feel quite alone like I don’t want to moan to anyone else.
So I really appreciate all of your replies xx
No need to just accept these symptoms. They can often figure it out even if it takes a long time. If it is reflux, you can take medication. If it is a migraine variant (no headache necessary) medication can help. You will feel better if you understand what the likely cause is.
Crossing fingers the brain scan is unchanged!!
Thanks so much xx
Brain scan end of the month fingers crossed it hasn’t got worse in 6months dx
Hey honey,
I don’t have this but I just wanted to butt in and just say “be careful with agreeing to inject anything into your body”. Maybe get some health care advice first. Once it’s in, it’s in and they way I see it autoimmune attacks what it believes to be a foreign object. For this reason I decided to stay away from b12 injections unless advised. Don’t mean to be a doom and gloom kind of person xx
That’s okay I have them via the gp any way for pen anaemia. I’ve already asked my nurse and she said too much Can’t hurt you it will just pass in your urine. So I’m willing to give anything a shot.
What you say makes sense though thanks for the advice il keep a eye on it xx
Sounds like you have a really good gp have the injections helped with the anemia?
Have you noticed any benefits in your general health?
X
St first I did a lot.
But I’m going to have to pay for regular ones as my bloods only warrant to have them every 8 weeks via gp but I think it’s 30 per injection so Il try.
But yes b12 is what looks after your nerves also once you have pa your bloods are no longer what your nurse should go by it’s treat your symptoms rather then your results,
I’m lucky my nurse has it too so she gets it and isn’t stingy with it.
Have a look into it see what you think this and cbd oil xx
Guess what? Your be pleased to read this. It’s a good job you missed your appointment this week at guys 😎
D Cruz wasn’t even in, his on holiday so you would have been seen by some random stand in as I did on Friday 😡😡😡 x
😭😭😭 that’s terrible but I have not been put under him directly I’m under doctor sana 🤦🏼♀️🤦🏼♀️❤️😂
I’m under dr yik man. Your first appointment they put you under one of d Cruz team of rheumatologist, if he asked for the referral.
Dr yik man wasn’t in either 🤨. I literally got so defensive when I see a new face. All this person kept saying was “ I will ask d Cruz”. “I will run it past D Cruz”. “You will have to ask d Cruz”’
Basically I should have stayed in bed 😂😂😂. X
😂😂😂 sounds about right glad I missed then xxx
Everything happens for a reason 😉x
I get this too and just like you it comes and goes and I can't really figure out what triggers it. I even visited a physio recently but they said they can't find anything that would cause it. I'm trying the dentist next! The painkillers I'm on damp it down a bit but not totally. My b12 is fine too (I had a course of injections late last year and my levels have stayed high since) so don't think it's that. Sorry I can't offer any help but can really sympathise as it's really horrible and I find it's much worse at night.
Mines worse in daylight I would check again your b12 and get a copy of the results I was told you are ment to treat symptoms not your blood work for as long as needed I’ve had my sinuses checked too all clear xx
Hello Buckley123, I can relate to the pain that you experience in your Jaw, Teeth & Neck.
I have issues with the right hand side of my Jaw, it keeps clicking and popping with ripping sounds. The left hand side of my Jaw is also affected but not to the same extend. When I have a bite to eat, it is very painful to open my Jaw to consume the food. I made an appointment with my Dentist, he believes that I made have arthritis in my Jaw. Sending me for an X-ray. He also stated that there is signs that I am finding my teeth. He is going to take impressions to enable me to wear a night Splint.
My neck is also painful, at times it seems my head is too heavy to hold!
I also have severe hot sharp shooting pains that run down both sides of my face, they last about 12 seconds, then ocurr intermittently throughout the day.
I hope you get to the bottom of what is causing your issues!
Take Care x
I get this head to heavy comment so much it’s so uncomfortable isn’t it xxx
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