Foot swelling, leg issues : Hey everyone, hope life... - LUPUS UK

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Foot swelling, leg issues

LauraMk30 profile image
4 Replies

Hey everyone, hope life is treating you all most kindly & gently,

Still ongoing investigations...

Some progress since my last post.

Recently my ankle on my left foot has been swelling, a large pouch of fluid (relate to images) recent sudden in toeing, twisting of entire left leg, hip, femur, kneecap, shin, ankle & toes. Struggling to walk. Podiatrist diagnosed

Congenital metatarsus adductus, (left leg)which was something not noticed at birth, but has gradually become unbearable as I’ve aged.

Also Femoral anteversion. Both legs.. more so on the left.

My hips, kneecap & ankles have been used to dislocation & subluxations, but suddenly my bones have deteriorated quite rapidly.

Any suggestions on what this fluid might be, I use a walking stick, use heat therapy, painkillers. Physio expressed surgery is the only option. I’ve never had fluid of this extent & it’s quite prominent & painful. No injuries..

Many thanks

Xx

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LauraMk30
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Roarah profile image
Roarah

Has your GP seen this. Edema can have many causes. But I would rule out some serious ones by seeing your GP. For a few moths before my stroke my feet would swell. I blamed it on the heat, humidity and over doing it. It might have been a circulation or a clotting issue as it turned out. So please rule out heart, circulation or clots.

Sorry about your pain. Good luck.

My left foot went through a similar looking stage about six years ago when I was previously diagnosed with RA. It started as just a minor pain when walking but then became a full on flare up in my left foot, leg and knee. I took Naproxen for a few days and this knocked it on the head completely. When I asked my physio about it she said it was tenosynovitis. Not sure if this helps but I saw the photo and my foot looked exactly like yours. At the time I was on Methotrexate and Hydroxichloraquine so my rheumatologist just increased my dose of Methotrexate I think.

Both RA and gout seem to be associated with tenosynovitis - but other rheumatic diseases too plus bacterial infection in skin, sporting injuries and other can all be trigger so this might include your congenital problem perhaps? healthline.com/health/tenos...

Hamptons profile image
Hamptons

Haha, if you ask my GP it’s because it’s hot. Got told that in winter too. Now it’s my age! The rheumatologist took it more seriously but is a closed book.

I have this in cycles, do have months where it goes - to be honest it is worse in the warmer months which is handy as you can wear stretchy shoes.

The swelling is normally the same every time -misses the foot and appears in my toes.

Do check it as quite rightly said odema has many causes but luckily mine just seems to be a happy puffiness which makes my ankles hurt. My OT was more helpful suggesting hot and cold immersions to improve circulation and reduce swelling.

corinusha profile image
corinusha

I had a knee looking like this, it was tenosynovitis. I did not received Naproxen, but they made an intervention and took out the liquid from my knee. It took around a month afterwards for the swelling to go down. They gave me an articular injection with cortizone.

This winter it happened to my shoulder. I dreaded the taking out the liquid procedure and they gave me Ketonal ( my stomach couldn't handle it). It took 4 months for the swelling to go away without the procedure.

I had difficulty putting a sweater on me and couldn't lift the arm above my head. Both articulations are now functioning less than perfect to say so.

Get well soon!!!

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