Anyone experience extremely cold sensations when ... - LUPUS UK

LUPUS UK

30,215 members26,792 posts

Anyone experience extremely cold sensations when laying down?

Lisalou19 profile image
11 Replies

I normally feel this coldness in the back of my chest, then it kind of radiates into the top of my chest and disperses.

Sometimes I get it up the side of my head or down my arms . It doesn’t hurt just feels so cold and only happens when I lay down. I’ve learnt that laying on my back helps stop it happening. It’s abit of a strange one and hard to put into words!

Can anyone relate to this?

X

11 Replies
Lupiknits profile image
Lupiknits

Sorry, I can’t relate because all my coldness comes from Raynaud’s and doesn’t have that pattern. It sounds very disconcerting. Does it last long? Does lying on your back help?

Lisalou19 profile image
Lisalou19 in reply to Lupiknits

It kind of keeps repeating until I lay on my back. Feels like possibly nerves maybe.

I can explain it almost like a labour pain how it comes and goes and disappears as it reaches its peak. It is such an extremely cold feeling that travels.

I thought maybe anxiety but it does go as soon as I move off my side x

Lupiknits profile image
Lupiknits in reply to Lisalou19

Strange. Needs a doctor really x

Lisalou19 profile image
Lisalou19 in reply to Lupiknits

You can just imagine the look I will get when I mention something else 🙄😂

Got Hospital on Wednesday

Will see what he says. My skin is literally on fire today. Sick of feeling sick!!!!!! X

Lupiknits profile image
Lupiknits in reply to Lisalou19

Big hug any help? xxx

Lisalou19 profile image
Lisalou19 in reply to Lupiknits

Always, thank you 😘

It’s half term and I feel awful 🙁 x

Lupiknits profile image
Lupiknits in reply to Lisalou19

And another one then x My heart goes out to anyone with children and these kind of disorders x

Lisalou19 profile image
Lisalou19 in reply to Lupiknits

Have you ever attended a&e because you just can’t take it anymore ! I’m half debating whether I should 😢x

Lupiknits profile image
Lupiknits in reply to Lisalou19

To escape your children? Hmm, best not because it’ll just be full of other’s kids. I often wished mine had an “off” switch.

If you are proper poorly and need A&E, of course.

Lisalou19 profile image
Lisalou19 in reply to Lupiknits

I love my children dearly. I wish they could escape me , it must be tough on them. X

Lupiknits profile image
Lupiknits in reply to Lisalou19

Aww No you really are the best mum. Really xxx

You may also like...