Lupus rash: Hi all, My lupus has been under control... - LUPUS UK

LUPUS UK

31,716 members28,082 posts

Lupus rash

Sarahjj87 profile image
6 Replies

Hi all,

My lupus has been under control for a while now due to rituximab infusions.

But I have woken up with a lupus rash this morning. Is it possible to have a lupus rash and lupus to still be under control? Or does this mean my lupus is active again? Sorry bit confused/worried.

Sarah x

Written by
Sarahjj87 profile image
Sarahjj87
To view profiles and participate in discussions please or .
Read more about...
6 Replies
LupusKaren profile image
LupusKaren

Hi Sarah, I always have a rash, on chest and face (face to lesser degree), and this has been in periods where my Lupus was described as quiet. Currently in a flare, so my rashes are more prominent atm. If you are concerned, do you have Lupus nurse you could contact, or seek opinion from a GP?

Sarahjj87 profile image
Sarahjj87

Thank you for your reply. Yes I have a lupus nurse I can get in touch with but I never like to bother them especially if it isn’t anything. I might give it a few days and see if it improves

Angie245 profile image
Angie245

My rash on my face always makes an appearance even when I’m having a good day... it used to be the first sign I was going to flare now just seems ever present. 🤷‍♀️

Sarahjj87 profile image
Sarahjj87

Really I think it was just the shock. I had a very bad rash right at the beginning but it soon cleared up and I haven’t had one since.

Penguintaz profile image
Penguintaz

Hi Sarah!

My lupus also seems to be under control after my infusion but I did get a very bright butterfly rash one night. For me it was linked to some emotional turmoil that had been going on and a busy day at work (sorted now!). After a good night sleep it died down but daily I do easily get Rosey cheeks. I think it can be a sign of a flare up but possibly a sign that we need a good rest! Just keep an eye on your other symptoms and if you are suffering then tell your nurse/ Rheumy.

I hope it is nothing to worry about! X

Sarahjj87 profile image
Sarahjj87

Thank you , really grateful for all your replies.

If am honest I have been dealing with a lot of stress maybe need to take a break and just rest a little x

You may also like...

is this a lupus rash?

to people with diagnosed lupus, does this look like a lupus rash? I have other pics too but it...

Lupus & Sjogrens skin rash

before starting Rituximab. Is it possible although covered up heat caused re-activation of rash? I...

Lupus rash

Hi there,  I have 3 different types of rashes going on. I have just been referred to a...

Benadryl tablets for hive looking lupus rash

keep under control hive looking like lupus rash? I came off prednisolone and only on hydroxy now...

Lupus rash

Hi all, Has anyone ever had lupus rash on their trunk? I've had a rash on my trunk twice now, just...