Hi, I’ve just got back from seeing my surgeon, he has explained what he needs to do, he will make 2 small incisions on either side of my wrist and an incision in my palm and do what he needs to do.
He has explained there is a small risk of failure, this could lead to making the blood flow worse and could lead to losing fingers or maybe the hand, but as he said this is a very small risk and he has had many other patients have this done with good results.
I have agreed to the surgery as I am aware that in years to come I could lose more anyway so at least by having this procedure I could possibly prolong the inevitable and live a relatively normal life for many more years, I just need to manage my pain until then.
He also looked at my middle finger which has gone gangrene and died at the tip but he has said he’s not wanting to amputate before the surgery as it looks like worst case scenario I’ll lose my nail and the dead part will self amputate instead of removing the full top end of it.
So all in all today was a very positive meeting with my surgeon and also my rheumy dr attended and everything that has been put in place is very positive and I am feeling very upbeat about the future.
Neurologist update. SFN?
Latest update & night sweats 
Update following my rheumatology app.
psychologist appointment; update
