So, after my recent posts about sudden & severe pains in my chest/upper abdomen and the possibility of Sjogren's etc, I requested my hospital notes from when I saw the ENT early on in my lupus journey.
I'd seen a private rheumy in November 2013 and then NHS in March 2014. Both said SCLE. We know know that was wrong and a lot more of my symptoms are clicking into place.
With my discussions with TT etc re silent reflux and it ringing bells me with me, I wanted to check out the notes.
My GP sent me to see the ENT as I had complained of a very sore throat, for months and months. It felt red raw. Like I had swallowed glass.
I saw the said ENT before his clinic early that morning. He had a nurse in the room, got a camera up my nose and asked me to swallow. I vaguely remember a conversation about silent reflux or lupus inflammation being to blame. He would write to my GP etc.
I knew nothing about silent reflux and was confused, I'd never suffered indigestion, even when pregnant. It wasn't something I understood and obviously at that point, I didn't know what it all meant re my lupus and possible sjogren's.
Well, the hospital notes have arrived, he confirms he exam and says nothing sinister and I'm a non-smoker.
He tells GP that I can try Lansoprazole or Omeprazole. He says he discussed this me with. I have no idea whether he did or didn't. BUT I do not remember. any GP ever mentioning this to me ever again????
Another thing to annoy me about the lack of care co-ordination with this illness.
The letter to my GP is May 2014.
I am now realising the consequences of this in 2018.
I had another episode of sudden & severe onset pain in my upper abdomen/ just under ribs, right in the middle, a week after the last. I was at home and my husband saw it. It scared him. I couldn't do anything and was clutching my chest. Luckily it was very brief that time, compared to 2.5 hours for the first attack.
Today, I have had sudden onset sever abdominal pain but lower down. Again I couldn't function. I couldn't eat my evening meal. Far too uncomfortable. I have burped a few times and can taste acidy stuff.
I have taken ranatadine 75mg now and again, but admit not every day. Due to the hydroxy I have been trying to take it mid day.
Is all this related? Each day brings new questions and no answers!
I have a GP appointment on Tuesday and will be raising this.
I have also been looking up GERD / Silent Reflux and IBS etc.
I have suffered diahorrea and passed mucus before. I get abdo pain. Always suspected IBS type stuff, caused by lupus.
Anyway, lots to think about.
On the plus side, its the summer holidays and this past week we've had relatives staying, so although a very busy, tiring week for me, we've had lots of fun, used my new UV beach tent and it's taken my mind off all the usual stuff.
Hope you are all doing well.