LUPUS UK
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Lupus

Lupus

Hi everyone am currently being tested for lupus. 2 of the blood tests have come back as positive consistently over the last ten years now having more tests. Have looked on lupus site and all my symptoms are there but what a carry on with my Drs. Have been so unwell since I was 17. Am now 52 and still awaiting more blood test results. Paid private to see a rheumatologist recently and what a difference paying for professional healthcare. Am now having the final blood tests and being out on a trial lupus medication and now being taken seriously. Any advice on how to manage this if I am diagnosed. Thank you.

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So sorry. Why did it take such long time??? I was very lucky, I was diagnosed straight away on my first flar-up.

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I was never believed because I didn’t have the Malar rash but had pleurisy, seizures, fibromyalgia, M.E reynauds, connective tissue disease and asthma. Add to that severe migraines, virtago, trigger thumb, problems with my liver, bowel and gallbladder. I was constantly told I was fine had a bladder operation, fibroids, polyps, etc. Am always unwell and can’t bear the sunlight. I hear some people are diagnosed straight away. Let’s hope I get answers soon.

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I hope you do too. Omg.

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