Life with lupus once you're off the meds?

[kyliexc]

Hey lupies!

I was diagnosed last March with SLE, and since then my meds have been tapered off to hydroxy & methotrexate - and my body's responding quite well. Used to get bad joint pain, now it's only discomfort for probably no more than an hour in a month? Docs are saying that we should wait a year or so before we think about reducing anymore. I was just wondering what it's like for anyone who's completely off the meds or even partially and whether any pain has come back/how frequently?

[Ianrussell69]

Hi I’m on hydroxy methatrexate and tramadol I’ve had to stop the methatrexate back in sept due to a bad infection hopefully going back on it in June but after 2 month joints and muscles and fatigue started to get worse,at the moment it’s pretty bad hoping it’s going to pass soon hope you get on ok

[kyliexc in reply to Ianrussell69]

Thanks for your reply! Hope you feel better soon!

[Kevin53]

One step at a time. Best wishes Kevin

[kyliexc in reply to Kevin53]

Thank you, Kevin!