I’ve been referred to rheumatology at Huddersfield for suspected Lupus but have to wait until 30th April for my appointment. My blood came back ANA negative for Lupus but enabled a diagnosis of Hashimoto’s and my GP has put me on Levthyroxine. Despite the negative ANA - he still believes that there is something else going on as my symptoms don’t all fit with Hashimoto. I’m so worried about it all and what it means for me and my work. I’m in a lot of pain right now and I’m not coping well at all.
I wonder if this sounds like Lupus to everyone - malar rash for several weeks now which gets worse when I’m outside, scalp and back of neck psoriasis, rashes across my chest, history of UTIs, depression, IBS and autoimmune thrombocytopenia, recurrent severe debilitating pain in the lower abdomen and kidneys, insomnia, headaches, dizziness, swelling and moderate pain in my fingers, wrists, elbows and left knee, shooting pains and tingling, sudden and unexpected swelling of my abdomen, recurrent flu-like illness with no cold symptoms just a high temperature and muscle/ joint pains, and I am exhausted all the time - falling asleep in meetings and in the evenings for short periods but then awake all night.
I’ve had these symptoms on and off for 15 years, the docs insisted it was gastro or gynae and I’ve had cameras in every hole and have been scanned to death. Just IBS - change your diet is the answer every time. Haematology saw me for a couple of years but then discharged me after my platelets mysteriously returned to normal after I had my daughter. It’s only with the appearance of the malar rash in January that the GP has started to think about a different diagnosis.
I’m really worried that the hospital will look at my negative ANA and just dismiss me again. I just want to understand what’s happening to me. Any advice is welcome.