Skin Problems - are these serious or what? - LUPUS UK

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Skin Problems - are these serious or what?

fruzsi01 profile image
4 Replies

I have been fighting rash and welts on my elbows, fingers, feet and now on my neck and a spot on my nose - I could peel my skin off the itching is so bad. Always feel like my hair is moving. I have Lupus since 2013 and have been trying to get off Prednizone (currently 5 mg) for a long time. Take Plaquenil, Cellcept - I can't stand all this and not feeling better - always these rashes and welts coming out, then it goes away, I use Cortizone cream and Aveeno to soothe it a little - changed to Dove soap. Can't shave my legs - I'm tired of going to the doctor and they dismiss it as well could be bug bites, etc - can't afford to take off time all the time for doctor's visits and pay co-pays, etc. Any suggestions?

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Lilrosie1 profile image
Lilrosie1

Omg tell me about it the rash ks the worse on my neck dr say its rosacea and i think i got mites. Trust me i knoq what your going through i dont even know how much longer i can deal with it

fruzsi01 profile image
fruzsi01 in reply to Lilrosie1

oh I'm so sorry - they don't say anything - always feel like a guinea pig! Even now I look at my right hand little finger all swollen and red and trying to do everything not to scratch it. Are you on meds?

AgedCrone profile image
AgedCrone

If I were you I'd stop using soap.....try something like Epiderm lotion.....I get it from my GP.

Soaps are the culprit for many skin conditions.....especially the scented ones.

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi fruzsi01,

Welcome to the LUPUS UK HealthUnlocked Community!

Have you been referred to a dermatologist for your skin concerns?

According to The Lupus Encyclopedia, soap can irritate the skin which can contribute to dryness, itchiness and rashes. Soap-free body washes are less likely to irritate skin. We published an article on our blog about ‘coping with itchy rashes’ which I hope you will find useful: lupusuk.org.uk/coping-with-...

If you are not satisfied with you doctor’s performance, you can request a referral to see a different doctor. We published a blog article which has a section discussing how you can change GPs/consultants here: lupusuk.org.uk/getting-the-...

To read our factsheet on ‘LUPUS: The Skin & Hair’, click here: lupusuk.org.uk/wp-content/u...

It is important to remember that people with lupus can experience periods of remission whereby their lupus is controlled; reducing their signs and symptoms. Periods of remission vary from person to person.

Please keep us updated, wishing you all the best.

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