My Husband has Mixed Connective Tissue Disorder and also cardio issues. At present he is suffering badly from Raynauds, he doesn’t really function very well outside and our home is warmer than Barbados! ( unless it’s me and hot flushes).
The rheumatologist would only suggest azathioprine but won’t prescribe it because his liver enzymes are too high. He came off methotrexate in the autumn and now told to stop taking leflunomide. So now he’s only on hydroxychloroquine, along with some heart drugs. His liver enzymes are still high ( will they go down?) .
Question, we’re worried his joint pain will now kick in in earnest. Are there any drugs that don’t effect the liver? Secondly any suggestions on how to deal with the Raynauds? ( apart from gloves etc). Feel frustrated, you wait for gp appointment, then blood test appointments, then blood test , then the gp, then the rhemy referral, then gp and then it all starts again . It will be summer before they decide on anything.